Here at Touretteshero we have what we call the ‘Ideas Shelf’. It’s an imaginary shelf and we put ideas for future projects, events or services on it. These ideas are then ready to be taken off the shelf when the … read more
Three years ago today, on the morning of Wednesday 14th June 2017, the country woke to the news of a devastating fire at Grenfell Tower. Later we would learn that 72 people, 18 of them children, had lost their … read more
Over the last couple of days I’ve felt a lingering sadness. This isn’t surprising given that we’re living through a global pandemic, but there was a bit more to it than that – I just couldn’t quite work out what … read more
This is a post I need to write but you might not need to read – I’m going to discuss some of the complicated, distressing parts of having Tourettes, and if reading it feels too much at any point please … read more
I feel really sad.
A deep churning sadness.
A very familiar and crushing mix of shame, frustration and exhaustion.
It’s a mix of feelings I can’t remember ever not being present. Experience tells me these feelings won’t last with the … read more
I realised in the cab on the way back from Heathrow that there aren’t many flights that I’ve done without Leftwing Idiot. On most journeys I’ve had a dedicated support worker too, but Leftwing Idiot’s almost always been there … read more
A few weeks ago I wrote about my tricky appointment with the local continence nurse. I was there to get a prescription for pads to help me manage some of the issues I’ve been having with my bladder. Towards … read more
My neuro urology appointment (a specialism within medicine that looks after how the bladder and brain work together) got off to a very wet start this morning. But the liquid being spilt wasn’t wee, it was tears.
I’ve been having … read more
I’ve been in bed for about five minutes and my body’s just starting to relax, with my incredibly soft duvet wrapped around me. But just before I slid into bed I had an unexpectedly emotional moment.
I’d been feeling quite … read more
We’ve been in Zurich for the last few days. The flight back yesterday morning was only an hour and twenty minutes. But for a wheelchair user flying is nearly always stressful and yesterday’s flight was no exception.
For the last … read more