NHS

Wonky Frog Legs

Last month I wrote excitedly about my new legs, not my actual legs but the new shock-absorbing frog legs that NHS wheelchair services were testing on my chair.

They’re brilliant and make for a much more comfortable ride, and … read more

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Flipper Fun

My two year old niece Bean looked at my feet and said:

“No, Aunty Touretteshero, not needed.”

She was right of course; I didn’t really need to be wearing flippers in the house, though as a wheelchair user I could … read more

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A New Spring In My Step

I’ve always been a big fan of bouncing.

Jumping up and down on the spot was something I did from a very early age and it was probably a very early motor tic.

Despite having pretty rubbish coordination when … read more

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Pad Ripping Fun

I’ve written a few posts about my on-going bladder issues and about how wearing pull up incontinence pads helps me manage this and feel more confident.

There’s one slight issue though. It’s not their bulkiness or the fact that some … read more

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Pad-emonium

A few weeks ago I wrote about my tricky appointment with the local continence nurse. I was there to get a prescription for pads to help me manage some of the issues I’ve been having with my bladder. Towards … read more

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Waiting Room Highs

At the end of last year I wrote about being laughed at and mimicked while in a hospital waiting room. Today at the same hospital I had a completely different and very lovely experience chatting to two women who were … read more

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A Routine Hurdle

I’ve had issues with my bladder for a long time, but just over a year ago they intensified. Since then I’ve been seeing a specialist neuro-urologist (neuro-uro), and with his help things have got a lot easier – particularly at … read more

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Waiting Room Lows

This morning my support worker Ellie and I were in the waiting room at the specialist neurological hospital I go to. I was there to have a nerve conduction test, which turned out to be a pretty intense experience … read more

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Water Works

My neuro urology appointment (a specialism within medicine that looks after how the bladder and brain work together) got off to a very wet start this morning. But the liquid being spilt wasn’t wee, it was tears.

I’ve been having … read more

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My In Between Body

A few weeks ago I had an MRI scan of my back that identified a couple of issues. I then went on holiday, and last weekend was dominated by my birthday celebrations. During this time the scan and the … read more

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