NHS

Disruption Equation

I’d had a really disrupted night. My pain level was exceptionally high and didn’t respond to any of the things that usually help, so I’d been awake since the early hours desperately trying to get comfortable enough to go back … read more

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Nah, Nu-nu-nu-nah, Nu-nu-nu-nah, Nu-nu-nu-nah, Nu-nu-nausea

For the last few years I’ve been struggling with feeling sick a lot and there was a long period when I used be sick every time I ate anything. A few months ago a dietician at my local hospital put … read more

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Wonky Frog Legs

Last month I wrote excitedly about my new legs, not my actual legs but the new shock-absorbing frog legs that NHS wheelchair services were testing on my chair.

They’re brilliant and make for a much more comfortable ride, and … read more

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Flipper Fun

My two year old niece Bean looked at my feet and said:

“No, Aunty Touretteshero, not needed.”

She was right of course; I didn’t really need to be wearing flippers in the house, though as a wheelchair user I could … read more

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A New Spring In My Step

I’ve always been a big fan of bouncing.

Jumping up and down on the spot was something I did from a very early age and it was probably a very early motor tic.

Despite having pretty rubbish coordination when … read more

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Pad Ripping Fun

I’ve written a few posts about my on-going bladder issues and about how wearing pull up incontinence pads helps me manage this and feel more confident.

There’s one slight issue though. It’s not their bulkiness or the fact that some … read more

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Pad-emonium

A few weeks ago I wrote about my tricky appointment with the local continence nurse. I was there to get a prescription for pads to help me manage some of the issues I’ve been having with my bladder. Towards … read more

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Waiting Room Highs

At the end of last year I wrote about being laughed at and mimicked while in a hospital waiting room. Today at the same hospital I had a completely different and very lovely experience chatting to two women who were … read more

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A Routine Hurdle

I’ve had issues with my bladder for a long time, but just over a year ago they intensified. Since then I’ve been seeing a specialist neuro-urologist (neuro-uro), and with his help things have got a lot easier – particularly at … read more

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Waiting Room Lows

This morning my support worker Ellie and I were in the waiting room at the specialist neurological hospital I go to. I was there to have a nerve conduction test, which turned out to be a pretty intense experience … read more

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