For the last few months this blog’s been dominated by posts about pain and fatigue. Keeping a balance of funny, serious, poignant, political and practical posts has always felt important to me, but it’s hard to … read more
I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position.
Then, a couple of weeks ago after a particularly bad … read more
My love of wheelchairs is no secret, and it extends to accessories as well – in the past I’ve written with great excitement about new wheelchair bags and push rims.
For the last few days I’ve been preoccupied with … read more
The last few weeks have been quite full on. We’ve been working hard on our new stage show, ‘Not I’, which we’re taking to the Edinburgh Fringe in just over a week’s time, and I’ve been experiencing lots … read more
When Teresa May called a snap general election just seven weeks ago I felt a flash of hope, followed by an overwhelming feeling of apprehension.
I desperately want to be part of a society that’s more socially just, where there … read more
I woke up a few moments ago and pulled up my bedroom blind. The sun’s shining boldly through a cloudy sky. Just as I was drifting off to sleep last night my phone bleeped with people checking that I was … read more
Last night I wrote with nervous excitement about my appointment with NHS Wheelchair Services this morning. We got off to a wobbly start because the taxi I’d booked was 45 minutes late and the longer we waited the tenser I … read more
It’s nearly midnight and I can’t sleep. A weird mixture of pain, excitement and apprehension has left me feeling the sort of nervous excitement you get before the first day at a new school. But it’s not that sort of … read more
One way or another I’ve had quite a few medical appointments recently. Some have been OK, but some have been frustrating.
As someone whose body is noticeably different from what health care professionals are trained to expect, I’m aware … read more
Over the last year or so I’ve been having issues with recurring pain in my lower back and pelvis. At times it’s made sitting in my wheelchair really uncomfortable.
This morning I got a call to tell me that an … read more