A month ago, at the start of lockdown, I wrote about the huge amounts of extra time and labour I was having to expend just to meet my basic requirements for safety, health, nutrition, finance and logistics.
I’m re-visiting this, … read more
Back in January we announced the exciting news that Touretteshero had been given a grant from Arts Council England’s Elevate Fund to develop and grow our team and the work that we do.
Our mission is to use Tourettes as … read more
I’ve always loved drawing – since childhood it’s been a key part of how I think and make sense of the world.
Having Tourettes hasn’t always made this easy. As a child my obsessive and impulsive tendencies meant that if … read more
I’ve tried to manage my tics a number of different ways over the years and one of the most effective for me has been through practical solutions and interventions that make life easier and safer.
Several years ago I did … read more
I knew it would happen sooner or later. I’ve watched friends go through the same difficult and time-consuming process over the last few years, and I knew my turn would come.
Today’s post brought a brown envelope from the Department … read more
Access to Work is a vital equalising scheme that provides the practical support that disabled people in employment need to do their jobs. For me this means covering the cost of my support worker and the additional costs of accessible … read more
I’ve just had a day of great meetings about really exciting projects and coming events. They’ve been in incredible places across London, including Tate Modern, the Wellcome Trust and Battersea Arts Centre. But I’m not going to discuss … read more
It’s 10’oclock, I’ve just got home from work because of a late meeting, I’m not feeling well, and I’ve just come across a horrible leak. And it’s not the watery kind that can be fixed by a plumber. It’s a … read more
Some people might see me as an ‘acceptable’ sort of disabled person. I work, pay tax and generally feel pretty positive about my life. But I’ll let you into a secret: this isn’t because I’m saintly or have an exceptional … read more
Yesterday our summer playscheme kicked off at work, and for the next five weeks our projects will be open all day every day, Monday to Friday. I’ve been adjusting my schedule a bit too, so my support workers are now … read more