Last year I led a creative project called Invisible Touch. It explored the relationship between physical touch and the experience of giving and receiving care. As part of this I interviewed other disabled people who had experience of care, and you can find them here.…

I love wheelchairs! I love what they’ve made possible for me and I love sharing what I’ve learnt about them with others. I even wrote an A-Z of everything I know about wheelchairs. That post is very detailed, and it might be a bit overwhelming to someone new to using a chair, but I also hope that it’s useful.…

“Biscuit” has been one of my regular tics for many years. I don’t know exactly when it started, but by early 2011 I was very biscuity! I once worked out that I tic “biscuit” about 16,000 times a day, so unsurprisingly it’s a word that lots of people strongly associate with me.…

In the early days of Touretteshero I met a well-known actress who was researching Tourettes for a role in a film. We met in a pub near where I live. At the time it amused me that we were both accompanied by our personal assistants (PAs).…

Tomorrow is Christmas Eve. I’ve got this week off, but I can’t relax quite yet because there’s a load of disability-related admin I need to complete. This includes doing the monitoring for my personal budget, emailing the occupational therapy team about a review, and calling Access to Work about some new equipment I need.…

I wrote recently about burn out and the steps we take at Touretteshero to help prevent it. While I’m lucky not to get burnt out by my work as an artist, I’m feeling utterly exhausted by the relentless work of being a disabled person living in the UK.…

A month ago, at the start of lockdown, I wrote about the huge amounts of extra time and labour I was having to expend just to meet my basic requirements for safety, health, nutrition, finance and logistics.

I’m re-visiting this, 28 days later, for a quick update on how my issues have been resolved – or not – and to highlight the ways disabled people are still falling through the gaps during lockdown life.…

Back in January we announced the exciting news that Touretteshero had been given a grant from Arts Council England’s Elevate Fund to develop and grow our team and the work that we do.

Our mission is to use Tourettes as a catalyst for celebration and social change – we want to be part of creating a more inclusive and socially just society for both disabled and non-disabled people.…

I’ve always loved drawing – since childhood it’s been a key part of how I think and make sense of the world.

Having Tourettes hasn’t always made this easy. As a child my obsessive and impulsive tendencies meant that if I made even a tiny mistake I’d have to start again, or sometimes I’d impulsively destroy my work.…

I’ve tried to manage my tics a number of different ways over the years and one of the most effective for me has been through practical solutions and interventions that make life easier and safer.

Several years ago I did a round-up of all these interventions, and I often share it with others who might find it useful.…