A month ago, at the start of lockdown, I wrote about the huge amounts of extra time and labour I was having to expend just to meet my basic requirements for safety, health, nutrition, finance and logistics.

I’m re-visiting this, 28 days later, for a quick update on how my issues have been resolved – or not – and to highlight the ways disabled people are still falling through the gaps during lockdown life.…

Back in January we announced the exciting news that Touretteshero had been given a grant from Arts Council England’s Elevate Fund to develop and grow our team and the work that we do.

Our mission is to use Tourettes as a catalyst for celebration and social change – we want to be part of creating a more inclusive and socially just society for both disabled and non-disabled people.…

I’ve always loved drawing – since childhood it’s been a key part of how I think and make sense of the world.

Having Tourettes hasn’t always made this easy. As a child my obsessive and impulsive tendencies meant that if I made even a tiny mistake I’d have to start again, or sometimes I’d impulsively destroy my work.…

I’ve tried to manage my tics a number of different ways over the years and one of the most effective for me has been through practical solutions and interventions that make life easier and safer.

Several years ago I did a round-up of all these interventions, and I often share it with others who might find it useful.…

I knew it would happen sooner or later. I’ve watched friends go through the same difficult and time-consuming process over the last few years, and I knew my turn would come.

Today’s post brought a brown envelope from the Department of Work and Pensions (DWP).…

Access to Work is a vital equalising scheme that provides the practical support that disabled people in employment need to do their jobs. For me this means covering the cost of my support worker and the additional costs of accessible transport to and from work.…

I’ve just had a day of great meetings about really exciting projects and coming events. They’ve been in incredible places across London, including Tate Modern, the Wellcome Trust and Battersea Arts Centre. But I’m not going to discuss any of these.…

It’s 10’oclock, I’ve just got home from work because of a late meeting, I’m not feeling well, and I’ve just come across a horrible leak. And it’s not the watery kind that can be fixed by a plumber. It’s a Government memo, leaked to the Daily Mirror that reveals a potential privatisation plan that could seriously undermine the careers of many disabled people.…

Some people might see me as an ‘acceptable’ sort of disabled person. I work, pay tax and generally feel pretty positive about my life. But I’ll let you into a secret: this isn’t because I’m saintly or have an exceptional character.…

Yesterday our summer playscheme kicked off at work, and for the next five weeks our projects will be open all day every day, Monday to Friday. I’ve been adjusting my schedule a bit too, so my support workers are now doing different days as well.…