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Aqqruuurrrrrr!

Having Tourettes means I’m sensitive to certain sounds. Some noises are uncomfortable for me to hear and make me overreact. There are others that I find really exciting, which make my tics go wild.

One such noise is the … read more

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‘Are You Sure You Want To Come In?’

Yesterday Joe and I travelled to north London to give a talk on inclusive practice to music educators from across the UK. We had a great morning and the talk seemed to go well. Afterwards we had half an hour … read more

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Don’t Touch My Chair

For wheelchair users one of the irritating and potentially distressing things that happens a lot is people touching your wheelchair without permission. I appreciate that this mostly occurs out of curiosity or a desire to be helpful, but it can … read more

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Waiting Room Highs

At the end of last year I wrote about being laughed at and mimicked while in a hospital waiting room. Today at the same hospital I had a completely different and very lovely experience chatting to two women who were … read more

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Waiting Room Lows

This morning my support worker Ellie and I were in the waiting room at the specialist neurological hospital I go to. I was there to have a nerve conduction test, which turned out to be a pretty intense experience … read more

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Fixed Stare

A couple of days ago I was waiting to pick up some medication in a busy hospital pharmacy. There was a boy aged about nine also waiting. I pulled up in my wheelchair and waited nearby.

The boy couldn’t take … read more

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Kitchen Catastrophe

A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.

The surveyor was late and while we waited I … read more

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See My Chair, See Me

Lily’s doing my overnight support this evening – we’ve finished brushing our teeth and we’re getting ready for bed.

After doing my teeth she helped me transfer out of my wheelchair and onto the toilet. While I coaxed my wee read more

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Can You Stop It?

Our last morning in Portland was a bright one. We enjoyed a relaxed start, packing slowly and getting ready for the long trip back to the UK. By mid-afternoon we were on the first leg of our journey, a short … read more

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Bed Day Breakthrough

I’m not very well today, but acknowledging that, and saying I’m ill, is something I find hard to do.

I’m used to identifying as ‘disabled’ within the context of the Social Model. To me, saying I’m a Disabled Person … read more

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