Having Tourettes means I’m sensitive to certain sounds. Some noises are uncomfortable for me to hear and make me overreact. There are others that I find really exciting, which make my tics go wild.
One such noise is the … read more
Yesterday Joe and I travelled to north London to give a talk on inclusive practice to music educators from across the UK. We had a great morning and the talk seemed to go well. Afterwards we had half an hour … read more
For wheelchair users one of the irritating and potentially distressing things that happens a lot is people touching your wheelchair without permission. I appreciate that this mostly occurs out of curiosity or a desire to be helpful, but it can … read more
At the end of last year I wrote about being laughed at and mimicked while in a hospital waiting room. Today at the same hospital I had a completely different and very lovely experience chatting to two women who were … read more
This morning my support worker Ellie and I were in the waiting room at the specialist neurological hospital I go to. I was there to have a nerve conduction test, which turned out to be a pretty intense experience … read more
A couple of days ago I was waiting to pick up some medication in a busy hospital pharmacy. There was a boy aged about nine also waiting. I pulled up in my wheelchair and waited nearby.
The boy couldn’t take … read more
A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.
The surveyor was late and while we waited I … read more
Lily’s doing my overnight support this evening – we’ve finished brushing our teeth and we’re getting ready for bed.
After doing my teeth she helped me transfer out of my wheelchair and onto the toilet. While I coaxed my wee … read more
Our last morning in Portland was a bright one. We enjoyed a relaxed start, packing slowly and getting ready for the long trip back to the UK. By mid-afternoon we were on the first leg of our journey, a short … read more
I’m not very well today, but acknowledging that, and saying I’m ill, is something I find hard to do.
I’m used to identifying as ‘disabled’ within the context of the Social Model. To me, saying I’m a Disabled Person … read more