Bureaucracy

Take Your Tears To Work Day

I’ve just had a day of great meetings about really exciting projects and coming events. They’ve been in incredible places across London, including Tate Modern, the Wellcome Trust and Battersea Arts Centre. But I’m not going to discuss … read more

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In Plane Sight

We’re on tour with Backstage In Biscuit Land again. We’ve been performing in Sarajevo for the last few days and at 4:00 this morning we left for Ireland.

Sarajevo is a beautiful city, full of generous, friendly people, but it’s … read more

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Pride, Shame and Independence

It’s American Independence Day today and it’s strangely appropriate that I’ve had my personal budget review this morning. My personal budget is the amount of money I get from my Local Authority Social Work team to pay for the support … read more

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IDS Syndrome

Some people might see me as an ‘acceptable’ sort of disabled person. I work, pay tax and generally feel pretty positive about my life. But I’ll let you into a secret: this isn’t because I’m saintly or have an exceptional … read more

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Council Tax - Disabled Band Reduction Scheme

The hateful Bedroom Tax, which is forcing many disabled people who rent their homes from local authorities to pay more rent because they need extra space due to their disability, has been in the news a lot over the … read more

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Passing the Baton

Organising my support over the last few weeks has sometimes felt like choreographing a never-ending relay race.

I’ve had to make sure there’s always someone to take over from the last person who’s been with me. It’s been complicated at … read more

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What happens if you swear in Barnsley?

Simple. You risk getting an on the spot fine of £80.

During June, Barnsley police are having a crackdown on swearing in public. I’m one of the 10% of people with Tourettes who swear involuntarily, so I took a particular … read more

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Reply

I’ve had a reply to my letter of complaint to Transport for London (TfL) and I’m not sure how I feel about what they say.

While the letter was generally apologetic, I felt it made excuses for the behaviour of … read more

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RSVP, Please

I’ve still not had a response to my letter to Transport for London. It’s been over two weeks since I wrote to complain about how I was treated by a member of the Underground staff at Old Street station.

Time … read more

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Distracting the Kids with Biscuits

I’ve been working late this evening so I’ve only just got back to the lair, and I’m feeling angry and depressed. It isn’t anything tic-related this time. It’s about a consultation meeting organised by the Council about cuts to services … read more

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