A couple of days ago I got an unexpected call from my Local Authority’s Adult Social Care Community Review Team (what a mouthful!) The woman I spoke to was very friendly and explained that she needed to visit me to … read more
I knew it would happen sooner or later. I’ve watched friends go through the same difficult and time-consuming process over the last few years, and I knew my turn would come.
Today’s post brought a brown envelope from the Department … read more
Access to Work is a vital equalising scheme that provides the practical support that disabled people in employment need to do their jobs. For me this means covering the cost of my support worker and the additional costs of accessible … read more
I’ve just had a day of great meetings about really exciting projects and coming events. They’ve been in incredible places across London, including Tate Modern, the Wellcome Trust and Battersea Arts Centre. But I’m not going to discuss … read more
We’re on tour with Backstage In Biscuit Land again. We’ve been performing in Sarajevo for the last few days and at 4:00 this morning we left for Ireland.
Sarajevo is a beautiful city, full of generous, friendly people, but it’s … read more
It’s American Independence Day today and it’s strangely appropriate that I’ve had my personal budget review this morning. My personal budget is the amount of money I get from my Local Authority Social Work team to pay for the support … read more
Some people might see me as an ‘acceptable’ sort of disabled person. I work, pay tax and generally feel pretty positive about my life. But I’ll let you into a secret: this isn’t because I’m saintly or have an exceptional … read more
The hateful Bedroom Tax, which is forcing many disabled people who rent their homes from local authorities to pay more rent because they need extra space due to their disability, has been in the news a lot over the … read more
Organising my support over the last few weeks has sometimes felt like choreographing a never-ending relay race.
I’ve had to make sure there’s always someone to take over from the last person who’s been with me. It’s been complicated at … read more
Simple. You risk getting an on the spot fine of £80.
During June, Barnsley police are having a crackdown on swearing in public. I’m one of the 10% of people with Tourettes who swear involuntarily, so I took a particular … read more