Inventions & Interventions

My Monastic Chamber

I had a visit last week from my occupational therapist (OT) whose job is to make sure I have everything I need to be as safe and independent at home as I can be.

Over the last year or so … read more

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Devoted, Disgruntled, Invigorated

In January 2014 I was having a tough time. I’d recently developed dystonia in my hands, which made it hard for me to use them. I had to learn to do things in new ways, like pulling my trousers up read more

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Bed Day Breakthrough

I’m not very well today, but acknowledging that, and saying I’m ill, is something I find hard to do.

I’m used to identifying as ‘disabled’ within the context of the Social Model. To me, saying I’m a Disabled Person … read more

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The Elephant Penis In The Room

Just after Christmas my friend Lottie told me about a product she’d seen at a trade fair – a wearable hot water bottle. She thought it might be useful in helping me to manage the pain I’ve been having … read more

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In Celebration Of Social Workers

A couple of days ago I got an unexpected call from my Local Authority’s Adult Social Care Community Review Team (what a mouthful!) The woman I spoke to was very friendly and explained that she needed to visit me to … read more

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Medication’s What I Need

Because of the chronic pain I’m experiencing, which I’ve written about a lot recently, I’m under the care of my local pain clinic and my GP, and I’ve got a range of medications to help me manage the pain.

There … read more

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Picture The Pain

For the last year-and-a-half I’ve been experiencing chronic pain in my back and hips which often keeps me awake at night. Despite having written about it a lot, I still haven’t worked out how to describe it effectively to other … read more

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Let’s Talk About Faff

I delivered a training session today for a media company who are making a documentary about Tourettes.

Often when I’m training people on issues relating to inclusion and equality I talk about the need to reduce ‘faff’ around disability. My … read more

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Changing Places Means Changing Attitudes

For over a decade Mencap have run Changing Places, an amazing campaign to improve toilet provision for disabled people across the UK.

Changing Places toilets are loos that meet a specific set of criteria – they are much bigger … read more

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In Bed With Stephen & Sherlock

Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.

Listening to audio books is something I’ve been doing a … read more