Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.
Listening to audio books is something I’ve been doing a … read more
I’ve written a lot recently about how I’m adapting to experiencing chronic pain.
While this isn’t straightforwardly related to Tourettes, I’ve started to appreciate that my motor tics have put a lot of physical pressure on my body for a … read more
I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position.
Then, a couple of weeks ago after a particularly bad … read more
I’m taking regular pain killers at the moment because of the chronic pain I’m experiencing in my back and hips – they’re essential for helping me get through the day and feel comfortable.
But I’m not brilliant at remembering to … read more
I’m finding it increasingly painful to switch my bedside light on and off. My support workers have been doing it for me most of the time but in the middle of the night I prefer to do it for myself.… read more
What’s the best way to manage jet lag? Turn’s out that epic re-arranging of furniture’s what works best for me.
We landed back in the UK this morning following an overnight flight from New York where we’ve been for the … read more
I love flow charts. Since first encountering them as a child I’ve found them a really useful way to get information.
I’ve made lots of my own before, including playful tic-based charts about penguins or lychees:
… and one aimed … read more
The last few weeks have been quite full on. We’ve been working hard on our new stage show, ‘Not I’, which we’re taking to the Edinburgh Fringe in just over a week’s time, and I’ve been experiencing lots … read more
Last night I wrote with nervous excitement about my appointment with NHS Wheelchair Services this morning. We got off to a wobbly start because the taxi I’d booked was 45 minutes late and the longer we waited the tenser I … read more
It’s nearly midnight and I can’t sleep. A weird mixture of pain, excitement and apprehension has left me feeling the sort of nervous excitement you get before the first day at a new school. But it’s not that sort of … read more