Last month I wrote excitedly about my new legs, not my actual legs but the new shock-absorbing frog legs that NHS wheelchair services were testing on my chair.
They’re brilliant and make for a much more comfortable ride, and … read more
My two year old niece Bean looked at my feet and said:
“No, Aunty Touretteshero, not needed.”
She was right of course; I didn’t really need to be wearing flippers in the house, though as a wheelchair user I could … read more
I’ve always been a big fan of bouncing.
Jumping up and down on the spot was something I did from a very early age and it was probably a very early motor tic.
Despite having pretty rubbish coordination when … read more
Fat Sister, King Russell and Bean popped in earlier. I had my Telecare pendant on because of a brief gap in my support. The pendant was round my neck and I’d totally forgotten it was there. Bean greeted me enthusiastically, … read more
I’ve written a few posts about my on-going bladder issues and about how wearing pull up incontinence pads helps me manage this and feel more confident.
There’s one slight issue though. It’s not their bulkiness or the fact that some … read more
I started working with disabled children in 1999 so I’m celebrating twenty years this year. For some of this time I worked in Lambeth’s Child and Adolescent Mental Health Service (CAMHS) in the Autism and Complex Needs Intervention Support Team… read more
I’ve written a lot over the last year about my increasing pain and decreasing energy. I’ve shared my concerns about the impact on my work, but I’ve not talked about the adjustments we’ve been making so I can keep … read more
I’ve had issues with my bladder for a long time, but just over a year ago they intensified. Since then I’ve been seeing a specialist neuro-urologist (neuro-uro), and with his help things have got a lot easier – particularly at … read more
My chest-banging tic has been around for almost a decade. When it began, my chest bruised a lot and I tried loads of different ways of managing it. I tried restricting the movement of my arm, Habit Reversal Training and … read more
Today’s the first day of my Christmas break and I’ve been celebrating with some wheelchair customisation. For a long time I thought I was stuck with whatever colour spokes I’d chosen when I got the chair, but last year I … read more