We’re on the eve of a big anniversary, but for me the end of this decade has special significance. Ten years ago, Touretteshero was born, since then everything’s changed, and I’ve become a radically different person. As the clock … read more
As a child growing up in 80s London, I remember power cuts being a fairly regular occurrence. There was something scary but exciting about them, and I always knew where the candles were, just in case.
In my adult life … read more
I’ve been working in Belgium this week. When I got back to the hotel this evening after a busy day I glanced at my personal emails, and I saw one that totally threw me.
It was from the care agency … read more
I’ve tried to manage my tics a number of different ways over the years and one of the most effective for me has been through practical solutions and interventions that make life easier and safer.
Several years ago I did … read more
When Monkey the cat first moved in he was understandably a bit nervous of my wheelchair, so much so that I teased Chopin about having an ableist cat. Since then he’s got used to the chair and in fact he’s … read more
I’m on holiday in Spain with Jess Mabel Jones, AKA Chopin. We arrived today and we’ll be here for five days of relaxation, swimming and sun.
I decided to go on holiday at the last minute so I used … read more
Yesterday I wrote about an idea Leftwing Idiot had recently that’s helped me think differently about taking breaks and resting when I need to. With just a few words he transformed my thinking and gave me a tool with which … read more
My sister had a BBQ yesterday. It was a small gathering of about fifteen close friends. I could see that her two-year-old daughter Bean was very excited by the party but also a bit overwhelmed by so many lovely people … read more
I’ve been recruiting for new support workers and have met some excellent people in the process. Last night was my first night with Chris, one of my new overnight support workers.
I like being supported by a mix of men … read more
About a month ago I was in the middle of watching an incredible show by Fevered Sleep called Men and Girls dance. It was just five professional male dancers and nine girls who dance for fun, joining forces for … read more