www.touretteshero.com is a place to celebrate the humour & creativity of Tourettes.

It’s not about mocking or commiserating - it’s about reclaiming the most frequently misunderstood syndrome on the planet and… Changing the World One Tic at a Time

The Blog!

Heroes Of The Imagination

I’m lying in bed, my soft duvet enveloping my exhausted body. This weekend the Touretteshero team’s been working flat out on Heroes of the Imagination at Southbank Centre’s Imagine Children’s Festival.

Over the last two days over 2000 children and … read more

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My Monastic Chamber

I had a visit last week from my occupational therapist (OT) whose job is to make sure I have everything I need to be as safe and independent at home as I can be.

Over the last year or so … read more

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Devoted, Disgruntled, Invigorated

In January 2014 I was having a tough time. I’d recently developed dystonia in my hands, which made it hard for me to use them. I had to learn to do things in new ways, like pulling my trousers up read more

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Bed Day Breakthrough

I’m not very well today, but acknowledging that, and saying I’m ill, is something I find hard to do.

I’m used to identifying as ‘disabled’ within the context of the Social Model. To me, saying I’m a Disabled Person … read more

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The Elephant Penis In The Room

Just after Christmas my friend Lottie told me about a product she’d seen at a trade fair – a wearable hot water bottle. She thought it might be useful in helping me to manage the pain I’ve been having … read more

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