touretteshero.com is a place to celebrate the humour & creativity of Tourettes.
It’s not about mocking or commiserating - it’s about reclaiming the most frequently misunderstood syndrome on the planet and…
Changing the World One Tic at a Time
Content Warning: Description of death
I don’t know exactly where to start with this, so I’m going to get the devastating news out the way first. Then I can focus all my attention on paying tribute to an epic friend.
Last week my long-term creative collaborator, and one third of the Tourettes Bipolar Alliance, Christopher ‘Captain Hotknives’ Smith died suddenly at home.…
Can you believe it’s been nearly three years since we launched our brilliant Zine, The Department for Wonder and Play? Now that we’ve got two volumes and two launch events under our collective belt, it feels like a good time to do it all over again!…
Supporting disabled-led thinking has been an important part of Touretteshero from the beginning, and over the last few years our research programmes have grown under the care of our Director of Research, Dr Will Renel. This got an added boost last year when Dr Chloe Trainor joined the team to coordinate our Knowledge for Change project.…
Often when I write these posts I’m doing it with a wide audience in mind, but this one is slightly different. While everyone’s welcome to read it, it’s particularly aimed at funding bodies, grant administrators and leaders across the arts and cultural sector, and it’s an urgent message.…
We’re a month away from Valentine’s Day, and if like Touretteshero, you and your family love inclusive, disabled-led, creative play, our event Return of the Rebels on Saturday 14th February is for you.
We’ve teamed up with the Whitechapel Gallery for Return of the Rebels, the second free, Rebel Play event that uses the positive play experiences of disabled children and adults as a creative springboard.…
For anyone old enough to remember, in 2011 Rihanna found love in a hopeless place. That place, if the video is anything to go by, turned out to be County Down in Northern Ireland. The song, with its catchy chorus, went to number one and spent an astonishing 63 weeks in the UK charts.…
Last year we launched the Touretteshero Welcome Pack, a set of artist designed letters that we provide free to children who are newly diagnosed with tics or Tourettes, and their families. The welcome pack includes letters to the child, to their parent/carers, and a version for them to give to their teachers and friends.…
If living with Tourettes has taught me one thing it’s that brains are incredibly complex and that medical understandings of neurological conditions and the reality of living with them can often feel quite different from each other. For the rest of this post, I’m delighted to hand over to Touretteshero Senior Producer, Nisha for a post about Epilepsy, shifting perspectives and organists.…
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