touretteshero.com is a place to celebrate the humour & creativity of Tourettes.
It’s not about mocking or commiserating - it’s about reclaiming the most frequently misunderstood syndrome on the planet and…
Changing the World One Tic at a Time
I love wheelchairs! I love what they’ve made possible for me and I love sharing what I’ve learnt about them with others. I even wrote an A-Z of everything I know about wheelchairs. That post is very detailed, and it might be a bit overwhelming to someone new to using a chair, but I also hope that it’s useful.…
Since last Tuesday we’ve been in Istanbul. I’d been mentally writing this post all week, excited to share one of the few bits of international work we’ve done since the start of the pandemic. But this won’t be the blog post I was planning because just hours after we left, Turkey and Syria were hit by a huge earthquake which has caused massive loss of life and left many more homeless.…
Over the last couple of weeks, the Touretteshero Team has been resting and relaxing, the Christmas holidays being the only time each year that we all stop together. This has given me a chance to think about everything we’ve done together this year.…
Eleven years ago today, I collected my first wheelchair from NHS Wheelchair services. I’d been nervous about using one, but within hours it was clear what a difference it would make to my life, safety, and independence.
My first chair was basic, made of steel, very strong but super heavy.…
“Biscuit” has been one of my regular tics for many years. I don’t know exactly when it started, but by early 2011 I was very biscuity! I once worked out that I tic “biscuit” about 16,000 times a day, so unsurprisingly it’s a word that lots of people strongly associate with me.…
We’ve been interested in technology focused research and practice for a long time. In 2013, Touretteshero collaborated with Dr Tom Mitchell and Dr Joseph Hyde on The Alchemy of Chaos which converted a year of ticcing episodes into music that was presented at a TEDx talk at the Royal Albert Hall.…
After several weeks of nail-biting uncertainty, we found out this morning that our bid to become an Arts Council England NPO was successful!
The process of applying was long and complicated and we had to work hard to make sure our access requirements were met along the way – so the announcement today comes as a huge relief for us all.…
In the early days of Touretteshero I met a well-known actress who was researching Tourettes for a role in a film. We met in a pub near where I live. At the time it amused me that we were both accompanied by our personal assistants (PAs).…
Have you ever seen a play and thought you’d like to write your own?
Join @caitmkearns and @CRIPticArts for the online workshop ‘Writing for Stage: The Fun-Damentals’
When - 14 Mar
Where - Online
Cost - Free
https://t.co/iVwjdiM1KH
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