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Aunties Are For Life

It’s been a rainy, grey day in London, but my afternoon got brighter when my three-year old niece Bean popped in with King Russell for a quick play in the garden on the way home from nursery.

Because her mum’s read more

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Yaska Sahara - Mama and Me

At the start of lockdown I was sent a short story about the experience of growing up with a parent with Tourettes by a young writer called Yaska Sahara. I found the piece incredibly moving and it was a perspective … read more

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What’s That?

At the weekend I met my sister and my niece Bean at a playground we haven’t visited since Bean was tiny. It was lovely to be back in a park playing together. I was wearing a mask and being careful … read more

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Keyworker Kids - A Revised Story

Almost exactly six months ago I created a story for my three-year-old niece Bean about her mum’s job as a doctor, to explain the coronavirus pandemic and what it would mean for our family.

As infection rates increase again, and … read more

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Serena Bhandari - Disabled Students, Know Your Rights

It’s the beginning of a new academic year and for students starting back or returning to university or college, COVID-19 makes this a start like no other. In this guest post, regular contributor and recent graduate Serena shares what she … read more

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How to be a good friend to someone with Tourettes

A new academic year is beginning. Children and young people are returning to school, students will be starting at University, and many adults will be settling back into work after the disruption of COVID-19. This post is for people who … read more

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Acceptance and Identity - Seven Stages

Yesterday morning, just before work, I was checking my Twitter timeline when a tweet caught my eye. It was from disability blogger and occupational therapist Georgia Vine asking for information about any model that’s useful for explaining the stages of … read more

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The Agony Shelf

Here at Touretteshero we have what we call the ‘Ideas Shelf’. It’s an imaginary shelf and we put ideas for future projects, events or services on it. These ideas are then ready to be taken off the shelf when the … read more

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Blustery Tree

It’s been a long, busy week and for a good part of it I was managing a heady mix of pain and nausea. One of these on their own I can usually cope with, but both together is overwhelming.

This … read more

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F***ing Captions

I did a stand-up comedy gig this afternoon, the first since lockdown. It was online of course, but it was still great to be performing again. The show was with Abnormally Funny People, a collective of disabled comedians. Alongside … read more

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