The Blog!

Parents - Evie Needs You!

Back in July, researcher Evie wrote a guest post about her project looking at tics and mealtimes. Back then she was recruiting young people to contribute their experiences. She’s back today but this time she’s looking for parent perspectives – … read more

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Affirmations for The End Times

I was chatting earlier with a friend who’s having a tough time, and it got me thinking about affirmations, by which I mean positive statements that you say out loud to help overcome negative thoughts.

I looked some up, and … read more

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Profiling My Beautiful Bed

Two years ago I reluctantly accepted my Occupational Therapist’s suggestion that I should start using a profiling (hospital-style) bed in order to help manage my pain. I was resistant to the idea because it was a single bed, and … read more

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Serena Bhandari - Reflecting On Life Out Of Lockdown-ish

Regular guest contributor Serena is here with important insights into her experiences of life seven months into the global pandemic.

As I sit at my dining-room table writing this post, the impending misery of a potential second lockdown swirls around … read more

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Lifted

I’ve been living at the castle for almost ten years! But, surprisingly, moving home was a lot less dramatic than some of the other changes that were going on in my life back then.

My tics had been affecting my read more

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Aunties Are For Life

It’s been a rainy, grey day in London, but my afternoon got brighter when my three-year old niece Bean popped in with King Russell for a quick play in the garden on the way home from nursery.

Because her mum’s read more

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Yaska Sahara - Mama and Me

At the start of lockdown I was sent a short story about the experience of growing up with a parent with Tourettes by a young writer called Yaska Sahara. I found the piece incredibly moving and it was a perspective … read more

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What’s That?

At the weekend I met my sister and my niece Bean at a playground we haven’t visited since Bean was tiny. It was lovely to be back in a park playing together. I was wearing a mask and being careful … read more

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Keyworker Kids - A Revised Story

Almost exactly six months ago I created a story for my three-year-old niece Bean about her mum’s job as a doctor, to explain the coronavirus pandemic and what it would mean for our family.

As infection rates increase again, and … read more

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Serena Bhandari - Disabled Students, Know Your Rights

It’s the beginning of a new academic year and for students starting back or returning to university or college, COVID-19 makes this a start like no other. In this guest post, regular contributor and recent graduate Serena shares what she … read more

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