The Blog!

“Remember, Remember, The Lamp-Post Hates November”

Yesterday I stayed in bed all day. After a week of preparation and two days of Brewing In The Basement at the Barbican Centre, my body demanded a break, and for once I listened. I didn’t have a load of … read more

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The Barbican Got Brewed!

It wouldn’t take a very detailed reading of this blog to discover that I haven’t been very well for the last few months. I’ve been adjusting to life with chronic pain, nausea and fatigue. It doesn’t sound like … read more

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Still Bill

Last week I wrote about how I was coming to the end of a very long and enjoyable audio book. I asked what I should listen to next and was overwhelmed with suggestions – thank you to everyone who recommended … read more

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Daunting Doctors

For the last few months this blog’s been dominated by posts about pain and fatigue. Keeping a balance of funny, serious, poignant, political and practical posts has always felt important to me, but it’s hard to … read more

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To The Edges And Beyond

Years ago I was into drawing the connections between different objects in my room. I’d map them, usually using myself as the starting point.

Tonight as I lay in bed trying to sleep, the coiled ball of pain that sits … read more

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In Bed With Stephen & Sherlock

Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.

Listening to audio books is something I’ve been doing a … read more

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Two Weeks To The Brew

There are just two weeks until we bring the Barbican’s Pit to life with amazing activities and performances for children and adults, celebrating creativity, diversity and bottom-up change.

Brewing In The Basement has a sensational line-up of radical artists all … read more

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Overtaken By A Baby

My niece is five months old now and she’s amazing company. We hang out together most days and I absolutely adore her. It’s amazing watching her grow and develop. But as the months pass I can feel myself getting strangely … read more

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My Boom and Bust Body

I’ve written a lot recently about how I’m adapting to experiencing chronic pain.

While this isn’t straightforwardly related to Tourettes, I’ve started to appreciate that my motor tics have put a lot of physical pressure on my body for a … read more

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Inclined To Sleep

I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position.

Then, a couple of weeks ago after a particularly bad … read more

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