The Blog!

It’s the Matrix

Last week the Government announced another national lockdown that will be in place into early December. In what is starting to feel like a brief intermission between lockdowns, we did some company planning to help us understand and deal with … read more

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Dongle or No Dongle?

It’s no secret that I LOVE wheelchairs! I love looking at them, talking about them, tinkering with them, and of course using them. I even wrote love letters to them in Backstage In Biscuit Land and I particularly enjoyed … read more

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A lot has happened since last autumn when I wrote about the Elevate funding we’d received from Arts Council England to help the Touretteshero team grow and make new plans for the future.

Our plans included recruiting for a General read more

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Parents - Evie Needs You!

Back in July, researcher Evie wrote a guest post about her project looking at tics and mealtimes. Back then she was recruiting young people to contribute their experiences. She’s back today but this time she’s looking for parent perspectives – … read more

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Phil Mitchell Half Term Saviour

It’s half term week and families across the UK will be looking for ways to keep everyone entertained. In non-pandemic times the Touretteshero team travel a lot and, in the process, we’ve developed some tic-inspired games to pass the time. … read more

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Sticky Swine

As we enter the second week of work on my bathroom, I’m really excited about all the development. But there’s one change that I was less prepared for – saying goodbye to the bathroom pigs!

Regular readers may remember … read more

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Sliding Into A New Era

On Monday work began on converting my bathroom into a fully accessible wet room with a height-adjustable sink, roll-in shower and fancy wash and dry toilet. The work’s involved knocking through into the cupboard next to the bathroom, and now … read more

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Bathroom Beginnings

I’ve lived at the castle for nine years. It’s on the ground floor and is accessible in most ways. The only area that hasn’t worked very well is the bathroom, but at long last this is about to change!

Back … read more

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Affirmations for The End Times

I was chatting earlier with a friend who’s having a tough time, and it got me thinking about affirmations, by which I mean positive statements that you say out loud to help overcome negative thoughts.

I looked some up, and … read more

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Profiling My Beautiful Bed

Two years ago I reluctantly accepted my Occupational Therapist’s suggestion that I should start using a profiling (hospital-style) bed in order to help manage my pain. I was resistant to the idea because it was a single bed, and … read more

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