The Blog!

Show Us Your Machines

Almost a decade ago I had a conversation that changed my life – I was sitting in Leftwing Idiot’s kitchen talking about my intensifying tics and he described my Tourettes as a “language-generating machine” and told me that not … read more

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 Please Help Me Find Amazing New PAs

I spend very little time on my own. To live an independent, happy, safe, creative life I need other people’s support and a team of personal assistants and support workers help me at work, at home and overnight.… read more

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Drawn to Draw

I’ve loved drawing for as long as I can remember. In fact when I was learning to write and finding it difficult I used to imagine each letter as a drawing. When I left school I studied art and went … read more

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Feet Made For Marking

When I was a kid the soles of my feet were often covered in scratches. I wasn’t a big fan of wearing shoes and I didn’t have the most sensitive of soles either.

Nowadays my leg tics mean I’m not … read more

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Passing On Pool Play

My grandad kept a diary for most of his life. In some ways it was very detailed and in others, very general. He noted the wildlife that had visited his garden, the miles the car had done, and who he’d … read more

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Penguin Life

My niece Bean loves animals but as a Londoner she doesn’t get loads of opportunities to see them, apart from on TV and the kitty that hangs out in her garden. She’s also much more into looking at them than … read more

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Wonky Frog Legs

Last month I wrote excitedly about my new legs, not my actual legs but the new shock-absorbing frog legs that NHS wheelchair services were testing on my chair.

They’re brilliant and make for a much more comfortable ride, and … read more

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Low Level Angst Sucks

I’ve been back in the UK for a couple of days, long enough to notice one big difference between here and the US.

It’s not in portion size, or car size or even political-lie size. In fact it’s not something … read more

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At Ease Lamp Post

There was something about the light in my kitchen just now that triggered a wave of contentment in me. My flat feels still, calm, and easy to be in.

It’s just before 8am and I’ve had an unsettled night’s sleep … read more

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A Tale of Tears and Two Countries

I realised in the cab on the way back from Heathrow that there aren’t many flights that I’ve done without Leftwing Idiot. On most journeys I’ve had a dedicated support worker too, but Leftwing Idiot’s almost always been there … read more

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