Yesterday I stayed in bed all day. After a week of preparation and two days of Brewing In The Basement at the Barbican Centre, my body demanded a break, and for once I listened. I didn’t have a load of … read more
It wouldn’t take a very detailed reading of this blog to discover that I haven’t been very well for the last few months. I’ve been adjusting to life with chronic pain, nausea and fatigue. It doesn’t sound like … read more
Last week I wrote about how I was coming to the end of a very long and enjoyable audio book. I asked what I should listen to next and was overwhelmed with suggestions – thank you to everyone who recommended … read more
For the last few months this blog’s been dominated by posts about pain and fatigue. Keeping a balance of funny, serious, poignant, political and practical posts has always felt important to me, but it’s hard to … read more
Years ago I was into drawing the connections between different objects in my room. I’d map them, usually using myself as the starting point.
Tonight as I lay in bed trying to sleep, the coiled ball of pain that sits … read more
Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.
Listening to audio books is something I’ve been doing a … read more
There are just two weeks until we bring the Barbican’s Pit to life with amazing activities and performances for children and adults, celebrating creativity, diversity and bottom-up change.
Brewing In The Basement has a sensational line-up of radical artists all … read more
My niece is five months old now and she’s amazing company. We hang out together most days and I absolutely adore her. It’s amazing watching her grow and develop. But as the months pass I can feel myself getting strangely … read more
I’ve written a lot recently about how I’m adapting to experiencing chronic pain.
While this isn’t straightforwardly related to Tourettes, I’ve started to appreciate that my motor tics have put a lot of physical pressure on my body for a … read more
I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position.
Then, a couple of weeks ago after a particularly bad … read more