The Blog!

Not So Ninja

Yesterday I wrote with pride about my stealthy stair-climbing skills as I crept past my niece’s room while she was asleep.

In the morning Fat Sister brought me a slice of peanut butter on toast. Because she’s my sister she … read more

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Ninja Training

Because lots of my support workers are still away after the holidays I’ve had a few more gaps in my support than normal. Fat Sister and King Russell have stepped in to help, and last night I went to stay … read more

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In Celebration Of Social Workers

A couple of days ago I got an unexpected call from my Local Authority’s Adult Social Care Community Review Team (what a mouthful!) The woman I spoke to was very friendly and explained that she needed to visit me to … read more

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Medication’s What I Need

Because of the chronic pain I’m experiencing, which I’ve written about a lot recently, I’m under the care of my local pain clinic and my GP, and I’ve got a range of medications to help me manage the pain.

There … read more

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“2017, Year of the Oscillating Grin”

I’m quite surprised to find myself at the last day of 2017. There are a million clichés about time passing quickly, and I’m loath to mention any of them, but this year really does feel as if it’s gone by … read more

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Not Complex At All

Earlier today Leftwing Idiot sent me a photo of a poster for an event taking place near the castle. He’d noticed it because it used language commonly associated with disability, ‘Complex Needs’, and had the tagline ‘A Christmas party for … read more

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Shakespeare’s Globe - The Remix

Back in September we teamed up with artist and researcher Will Renel from the Helen Hamlyn Centre for Design to run a weekend of creative collaboration called Remixing the Globe. The workshop was for young adults with Tourettes and explored … read more

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Picture The Pain

For the last year-and-a-half I’ve been experiencing chronic pain in my back and hips which often keeps me awake at night. Despite having written about it a lot, I still haven’t worked out how to describe it effectively to other … read more

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Four Years, Two Tics and Thirty Christmases

Touretteshero’s had a birthday party in the past, and has delivered lots of events, but we’ve never had a team party before, and that’s because until recently we were mainly just a team of two, Leftwing Idiot and me.… read more

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Let’s Talk About Faff

I delivered a training session today for a media company who are making a documentary about Tourettes.

Often when I’m training people on issues relating to inclusion and equality I talk about the need to reduce ‘faff’ around disability. My … read more

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