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A Care Less Business

I’ve been working in Belgium this week. When I got back to the hotel this evening after a busy day I glanced at my personal emails, and I saw one that totally threw me.

It was from the care agency … read more

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Intervention Round-Up Reloaded

I’ve tried to manage my tics a number of different ways over the years and one of the most effective for me has been through practical solutions and interventions that make life easier and safer.

Several years ago I did … read more

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This Is Not A Fitiversary

Monday was my eighth fitiversary, eight years since the day when the seizure-like episodes of intense tics that I call ‘ticcing fits’ became a regular part of my life. They’d been happening on and off for months, … read more

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Cat Culture

When Monkey the cat first moved in he was understandably a bit nervous of my wheelchair, so much so that I teased Chopin about having an ableist cat. Since then he’s got used to the chair and in fact he’s … read more

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Pitching In

Over the last fifteen years or so I’ve read quite a few research articles on Tourettes, many of them focused on the effectiveness of various treatments. Recently we were contacted by a researcher with a very different area of interest … read more

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Disruption Equation

I’d had a really disrupted night. My pain level was exceptionally high and didn’t respond to any of the things that usually help, so I’d been awake since the early hours desperately trying to get comfortable enough to go back … read more

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“’Draw a Biscuit’ Said Picasso To The Wolf”

It’s the first day of October which means it’s also the first day of Inktober. This is a creative initiative started by artist Jake Parker back in 2009 in an attempt to improve his drawing skills. The idea was … read more

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Wheelchair Cat

Monkey the cat seems to be well and truly settled in. When he first arrived he was wary of my wheelchair. This is quite sensible really, and in stark contrast to my experience with dogs who often seem completely unaware … read more

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Chopin Moves In

I’ve lived alone at the castle since Poppy moved out back in 2013. That isn’t to say I’ve been completely on my own because a different support worker stays with me each night – I used to say this … read more

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Lego Wheelchairs

My niece Bean is two-and-a-half and she loves building structures with blocks – she calls them ‘structions’. The blocks we play with are the same ones that Fat Sister and I had as kids.

I have poor dexterity in my … read more

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