I’ve had a new tic for the last few weeks. It’s frequent and consistent and leading to lots of conversations, some intense, some interesting, and some challenging.
This new tic is: “Long live Palestine, long live Gaza.”
This is a tic.…
Today is my twelfth ‘Fitiversary’ – twelve years ago today I woke up moving about frantically and uncontrollably. I’d lost voluntary speech and was experiencing painful dystonic tics which twisted my body. These episodes had been happening on and off for a while and I’d initially referred to them as the ‘dying fish’, but twelve years ago they became a much more regular part of my life.…
We’re back in London after the first week of touring Burnt Out In Biscuit Land. We came back through central London which is already heaving with flags for the coronation next week.
I read an article about the pledge of allegiance that will form part of the coronation ceremony.…
As I was drifting off to sleep last night, my tics were having their regular chat with the lamp-post outside my window. But unusually, rather than telling it off, they were asking it for wisdom. This got me thinking about the lamp-post as a lifestyle guru.…
One of the mysterious things about Tourettes is why certain words or noises become vocal tics. Anything I’ve ever known can become a tic, even things I’m not consciously aware of have turned up – I had to google: Alan Hanson, marmoset and whether Keith Duffy was allergic to peanuts.…
It was World Book Day a couple of weeks ago and primary school children across the land dressed up as their favourite characters, to celebrate the power of stories. This got me thinking about the books I loved as a child, and the stories about disability and neurodivergence which I looked for but never found.…
Guest posts from the amazing creatives, supported by our Young Artist Development Programme (YADP), continue, and this week’s spotlight is on Beth Greenwood. Over to you Beth.
Most often, the type of art that inspires me isn’t displayed in galleries or in a physical place.…
It’s the Conservative Party conference this week and it’s been all over the news.
This afternoon Prime Minister Boris Johnson gave a speech about ‘levelling up’. I’m not sure what this means for the country and I’m fairly sure Boris doesn’t either, but I do know what it means for my tics:
“Boris Johnson levelling up with stilts made of shit.”…
A little over a year ago the world changed overnight and for many disabled people this meant that the barriers we experience changed too.
For some, this meant new challenges and frustrations, while for others the switch to more online activities opened up new possibilities.…
A couple of years ago I was in Portland, Oregon performing at a festival. We were over there for a couple of weeks and had an incredible time. This was partly because of the place and the people, but also because cannabis is legal in Oregon.…
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