We’re on the eve of a big anniversary, but for me the end of this decade has special significance. Ten years ago, Touretteshero was born, since then everything’s changed, and I’ve become a radically different person. As the clock … read more
Back in 2015 Leftwing Idiot and I wrote a short relay play called Light Of My Life about the strange relationship I have with the lamp-post I can see from my bedroom window.
We mixed tics with chosen language without … read more
I’ve tried to manage my tics a number of different ways over the years and one of the most effective for me has been through practical solutions and interventions that make life easier and safer.
Several years ago I did … read more
Monday was my eighth fitiversary, eight years since the day when the seizure-like episodes of intense tics that I call ‘ticcing fits’ became a regular part of my life. They’d been happening on and off for months, … read more
When Monkey the cat first moved in he was understandably a bit nervous of my wheelchair, so much so that I teased Chopin about having an ableist cat. Since then he’s got used to the chair and in fact he’s … read more
Over the last fifteen years or so I’ve read quite a few research articles on Tourettes, many of them focused on the effectiveness of various treatments. Recently we were contacted by a researcher with a very different area of interest … read more
It’s the first day of October which means it’s also the first day of Inktober. This is a creative initiative started by artist Jake Parker back in 2009 in an attempt to improve his drawing skills. The idea was … read more
I’ve lived alone at the castle since Poppy moved out back in 2013. That isn’t to say I’ve been completely on my own because a different support worker stays with me each night – I used to say this … read more
Disclaimer: I’m not writing this post alone. There’s a heavy weight lurking on my chest, vibrating relentlessly, and occasionally batting my face for asnmyu,uuuuu attention. My vibrating companion also keeps stepping on the keyboard…
Introducing Monkey the cat. Monkey is … read more
From my bedroom window I can see three majestic trees, their silhouettes looming large in my familiar and treasured view. Right now it’s the very end of dusk and they’ve almost vanished into the darkness.
But while they might be … read more