This pandemic’s making everyone re-evaluate their relationship with touch, whether that’s contact with other people, our surroundings, or even our own bodies. Last June I wrote about the role physical touch plays in my life, and for a week I … read more
I mentioned yesterday that my ‘ticcing fits’ had been particularly intense in the last week. On Friday evening I had a fit in the bathroom – this is the worst room in the castle for this to happen … read more
When I was a kid the soles of my feet were often covered in scratches. I wasn’t a big fan of wearing shoes and I didn’t have the most sensitive of soles either.
Nowadays my leg tics mean I’m not … read more
Last month I wrote excitedly about my new legs, not my actual legs but the new shock-absorbing frog legs that NHS wheelchair services were testing on my chair.
They’re brilliant and make for a much more comfortable ride, and … read more
My chest-banging tic has been around for almost a decade. When it began, my chest bruised a lot and I tried loads of different ways of managing it. I tried restricting the movement of my arm, Habit Reversal Training and … read more
A few weeks ago I went to speak at a National Trust event in Derby, which turned out to be a really interesting experience. Unexpectedly I also got to indulge one of my biggest passions – talking about wheelchairs.
The … read more
While we’re here in Portland, Leftwing Idiot, Lily and I are sharing an apartment-sized hotel suite. I wrote the other day about the difficulties I’ve been having weeing and the bladder stimulating device I’ve been given to try out.… read more
I’ve been resting at home after a minor operation on Friday to change my pacemaker battery. As a result my sleep has been a bit disrupted by pain and discomfort in my chest. But last night it was disrupted by … read more
The Paralympics in Brazil start next week. Yesterday afternoon though, my body seemed to be embracing the sporting spirit a bit early, and in its own ridiculous way.
I was working away on the sofa when I started having a … read more
A couple of weeks ago I had a ‘ticcing fit’ in the hallway of the castle that left a nasty impression on me.
During the fit my arm pressed against a hot radiator pipe. Because I couldn’t move I quickly … read more