Friends & Family

Drawing On My Web Of Support

I’ve been on holiday in Spain with Fran for almost a week now. Tomorrow will be our last day and naturally my mind’s started to shift to life back home, particularly the week ahead. When I looked at my support … read more

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Searching For Solidarity

Dear friends and family, you might want to change your WhatsApp settings so they don’t show the last time you were active. That’s because I’ve taken to using it as a way to find company when I’m awake in the … read more

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Living the Dream

I’m lying by the pool with the Spanish sun soaking into my body. Fran and I arrived in Mallorca yesterday and we’re here for a week of total rest – writing blog posts is the only work-related activity permitted and … read more

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On Your Marks Get Set Rest

I’ve been incredibly lucky to go all over the world with work, including to Australia, Canada, Bosnia and the United States, but although I’ve done a load of travelling I haven’t actually been on a proper holiday … read more

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The Brilliant Blue Time Machine

I’ve been in bed for about five minutes and my body’s just starting to relax, with my incredibly soft duvet wrapped around me. But just before I slid into bed I had an unexpectedly emotional moment.

I’d been feeling quite … read more

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Laughs From The Past

Earlier this evening Leftwing Idiot and I were chatting on the phone when he said something that made me draw breath. For a moment it felt like my brain stalled, jarred by a sad truth in an ordinary conversation.

We … read more

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Face Fairy

Last year Leftwing Idiot bought me some lavender spray to help me sleep.

My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.… read more

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Glowing Up and Down

I have an unusual and fluctuating relationship with the lamp-post I can see from my bedroom window.

I scold, nag and insult it on most nights.
But I also invite it into my bed when it’s cold.

I deride all … read more

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Baby Fatigue

It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.

Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing read more

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Kitchen Catastrophe

A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.

The surveyor was late and while we waited I … read more

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