Friends & Family

Challenging Myself

I feel really sad.
A deep churning sadness.
A very familiar and crushing mix of shame, frustration and exhaustion.

It’s a mix of feelings I can’t remember ever not being present. Experience tells me these feelings won’t last with the … read more

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A Birthday For Bean

Almost two years ago something remarkable happened: Fat Sister had a baby, my beautiful, brilliant, hilarious niece, Bean.

I’ve worked with children for about twenty years but they’ve always been five years or older and I had limited … read more

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Show Us Your Machines

Almost a decade ago I had a conversation that changed my life – I was sitting in Leftwing Idiot’s kitchen talking about my intensifying tics and he described my Tourettes as a “language-generating machine” and told me that not … read more

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 Please Help Me Find Amazing New PAs

I spend very little time on my own. To live an independent, happy, safe, creative life I need other people’s support and a team of personal assistants and support workers help me at work, at home and overnight.… read more

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Drawn to Draw

I’ve loved drawing for as long as I can remember. In fact when I was learning to write and finding it difficult I used to imagine each letter as a drawing. When I left school I studied art and went … read more

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Passing On Pool Play

My grandad kept a diary for most of his life. In some ways it was very detailed and in others, very general. He noted the wildlife that had visited his garden, the miles the car had done, and who he’d … read more

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Penguin Life

My niece Bean loves animals but as a Londoner she doesn’t get loads of opportunities to see them, apart from on TV and the kitty that hangs out in her garden. She’s also much more into looking at them than … read more

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Spring In NYC

It’s our last day in New York, the sun’s been shining and the sky’s been a bright, clear blue. Our hotel is really close to Central Park and we walked across it, grabbed a breakfast juice, and headed to the … read more

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Flipper Fun

My two year old niece Bean looked at my feet and said:

“No, Aunty Touretteshero, not needed.”

She was right of course; I didn’t really need to be wearing flippers in the house, though as a wheelchair user I could … read more

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Don’t Touch My Chair

For wheelchair users one of the irritating and potentially distressing things that happens a lot is people touching your wheelchair without permission. I appreciate that this mostly occurs out of curiosity or a desire to be helpful, but it can … read more

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