For wheelchair users one of the irritating and potentially distressing things that happens a lot is people touching your wheelchair without permission. I appreciate that this mostly occurs out of curiosity or a desire to be helpful, but it can … read more
Fat Sister, King Russell and Bean popped in earlier. I had my Telecare pendant on because of a brief gap in my support. The pendant was round my neck and I’d totally forgotten it was there. Bean greeted me enthusiastically, … read more
I started working with disabled children in 1999 so I’m celebrating twenty years this year. For some of this time I worked in Lambeth’s Child and Adolescent Mental Health Service (CAMHS) in the Autism and Complex Needs Intervention Support Team… read more
My mum’s from Lancashire, her mum was from Lancashire, and so was her mum and her mum before that. Pretty much all my mum’s relatives still live there, just outside Blackpool, in and around Lytham St Annes.
I was … read more
I’ve had issues with my bladder for a long time, but just over a year ago they intensified. Since then I’ve been seeing a specialist neuro-urologist (neuro-uro), and with his help things have got a lot easier – particularly at … read more
I’m excited to hand over today’s blog to my friend and voice researcher Sophie Meekings. Sophie’s supported Touretteshero in a number of ways, most recently by volunteering at our big inclusive event Brewing In Battersea. She’s here to let you … read more
My nineteen-month-old niece Bean can walk – she’s been able to since she was nine months old! Tonight, though, she decided to go back to crawling – not baby crawling but crawling aunty-style.
We’d been playing in her room on … read more
Happy New Year! We’ve made it to the end of 2018. For the Touretteshero team the year’s been crammed full of activity, events, touring and TV. As with most years there have been some incredible highs, and some painful lows … read more
Visitors to the castle would be forgiven for thinking that I’m really into pigs, whether because of the extravagantly decorated dog toys pigs lined up on my shelves, or the many tiny pig stickers that cover my walls and skirting … read more
It’s my support worker Ellie’s birthday. She was supporting last night too, so we were together as the clock struck midnight and she turned twenty-five.
At that exact moment Ellie was helping me with my pre-bed catheter and my tics … read more