It wouldn’t take a very detailed reading of this blog to discover that I haven’t been very well for the last few months. I’ve been adjusting to life with chronic pain, nausea and fatigue. It doesn’t sound like … read more
Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.
Listening to audio books is something I’ve been doing a … read more
There are just two weeks until we bring the Barbican’s Pit to life with amazing activities and performances for children and adults, celebrating creativity, diversity and bottom-up change.
Brewing In The Basement has a sensational line-up of radical artists all … read more
When we set up Touretteshero almost eight years ago one of our big aims was to put on exciting inclusive events. I know from my own experience how important it is to have positive experiences to draw on when things … read more
My body was heavy with tiredness when I woke this morning after an intense week in Edinburgh for the Fringe. It was nice to wake up in my own bed though, and to see Joyce, who helped me get … read more
I’m sitting on a train, my laptop on my legs, the screen flickering with sunlight and passing reflections. Looking up occasionally, I’m catching glimpses of yellow fields with neat hedgerows, or small towns with a muddle of red roofs, chimneys, … read more
I’m lying on the bed in my accessible studio flat in Edinburgh. We arrived in the city yesterday. After a long day of traveling and months of preparation it felt incredible to be here at last, and even more incredible … read more
Back in December six young creatives with Tourettes came together for a weekend of thinking, talking and making at Battersea Arts Centre. Together with researcher Will Renel we explored the theme of sonic inclusion. I’m excited to announce that … read more
When Teresa May called a snap general election just seven weeks ago I felt a flash of hope, followed by an overwhelming feeling of apprehension.
I desperately want to be part of a society that’s more socially just, where there … read more
This morning there was a buzz at the castle door. My support worker was in the other room so I crawled through to answer it.
It was a delivery driver with a package for one of my neighbours, and I … read more