Over the last decade, just existing as a Disabled Person has felt like a political act. Everything I do is directly affected by the political decisions of people who’ve never met me. There’s the social care support that means I … read more
The other day, out of the blue, I got a call from a researcher asking if I’d be up for contributing to a radio segment on balancing work and Tourettes. I couldn’t do it because I was in rehearsals for … read more
I’ve been working in Belgium this week. When I got back to the hotel this evening after a busy day I glanced at my personal emails, and I saw one that totally threw me.
It was from the care agency … read more
I’d had a really disrupted night. My pain level was exceptionally high and didn’t respond to any of the things that usually help, so I’d been awake since the early hours desperately trying to get comfortable enough to go back … read more
I’ve just got back from performing at the Brilliant Shambala Festival. Shambala’s got a very special place in my heart for several reasons – it’s the first place where I ever went on stage. It’s where I learnt the … read more
Earlier this year we held the Festival of Rest & Resistance at Battersea Arts Centre in London. On the lead up to that event we commissioned an artist to design and make a brand new chill out space at BAC. … read more
Back in April 2018 I wrote a post called Stop Talking And Start Relaxing, sharing my frustrations about the pace of change surrounding relaxed theatre performances. These are performances that make a number of small, low- or no-cost … read more
It’s What Matters To You Day. This might not matter to you yet but to me it’s the cornerstone of my life.
I have a personal budget provided by my local social care team the aim of which is … read more
Plastic straws have been banned in the UK. This has been on the cards for months but the new legislation was announced only a few days ago. There’s a medical exemption for ill or disabled people who require them, … read more
We’re just settling into the second week of the Festival of Rest and Resistance which I’ve curated at Battersea Arts Centre. As a two-week festival it’s the longest event we’ve programmed and we’re trying to make sure we practise … read more