Challenges

Disruption Equation

I’d had a really disrupted night. My pain level was exceptionally high and didn’t respond to any of the things that usually help, so I’d been awake since the early hours desperately trying to get comfortable enough to go back … read more

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“’Draw a Biscuit’ Said Picasso To The Wolf”

It’s the first day of October which means it’s also the first day of Inktober. This is a creative initiative started by artist Jake Parker back in 2009 in an attempt to improve his drawing skills. The idea was … read more

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Punch Line Punch Down Punch Up

I’ve just got back from performing at the Brilliant Shambala Festival. Shambala’s got a very special place in my heart for several reasons – it’s the first place where I ever went on stage. It’s where I learnt the … read more

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Pain Portrait

In my early teens I was introduced to the idea of ‘Pen Portraits’. These are described online as informal descriptions of a person that may include ‘hard’ characteristics like age, but will also focus on softer dimensions such as … read more

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Artful Access

This morning I left the castle for the first time in almost a week after a nasty infection kept me in bed for several days. Feeling better and keen to get out I went to meet one of my oldest … read more

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Post-Tonsil Tonsillitis

I’m finally emerging from a week lost to illness. Last Sunday I woke up at Boomtown with a very sore throat. As the day progressed I felt increasingly unwell so we headed home early and I went straight to bed.… read more

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Stop Talking And Start Relaxing 2019

Back in April 2018 I wrote a post called Stop Talking And Start Relaxing, sharing my frustrations about the pace of change surrounding relaxed theatre performances. These are performances that make a number of small, low- or no-cost … read more

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Extreme Catheters

I’ve been recruiting for new support workers and have met some excellent people in the process. Last night was my first night with Chris, one of my new overnight support workers.

I like being supported by a mix of men … read more

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‘That One’ Snap

Airports can be fraught places for everyone. I find them particularly stressful, unsure if I’ll be able to get into my seat, go to the toilet, be shushed, ignored or dropped. They are, though, part of being … read more

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Body of Pain

It feels as if my body’s gone on strike. Or maybe more than that, it’s as if it’s engaged in some sort of direct action against me.

Since January I’ve been swimming at my local hydrotherapy pool on most days. … read more

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