Challenges

Challenging Myself

I feel really sad.
A deep churning sadness.
A very familiar and crushing mix of shame, frustration and exhaustion.

It’s a mix of feelings I can’t remember ever not being present. Experience tells me these feelings won’t last with the … read more

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Feet Made For Marking

When I was a kid the soles of my feet were often covered in scratches. I wasn’t a big fan of wearing shoes and I didn’t have the most sensitive of soles either.

Nowadays my leg tics mean I’m not … read more

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Low Level Angst Sucks

I’ve been back in the UK for a couple of days, long enough to notice one big difference between here and the US.

It’s not in portion size, or car size or even political-lie size. In fact it’s not something … read more

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A Tale of Tears and Two Countries

I realised in the cab on the way back from Heathrow that there aren’t many flights that I’ve done without Leftwing Idiot. On most journeys I’ve had a dedicated support worker too, but Leftwing Idiot’s almost always been there … read more

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A Shocking Call To Action

We’re just settling into the second week of the Festival of Rest and Resistance which I’ve curated at Battersea Arts Centre. As a two-week festival it’s the longest event we’ve programmed and we’re trying to make sure we practise … read more

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Who’s In the Rows?

Note: An Easy Read version of this blog is available at the bottom of the post.

For the last week or two my timeline’s been full of discussion about ‘All In A Row’, a play which opened this … read more

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‘Are You Sure You Want To Come In?’

Yesterday Joe and I travelled to north London to give a talk on inclusive practice to music educators from across the UK. We had a great morning and the talk seemed to go well. Afterwards we had half an hour … read more

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Don’t Touch My Chair

For wheelchair users one of the irritating and potentially distressing things that happens a lot is people touching your wheelchair without permission. I appreciate that this mostly occurs out of curiosity or a desire to be helpful, but it can … read more

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Outrage or Inspiration?

In the last week or so I’ve seen lots of memes, videos and photos online that relate to disability. All of these have shown ordinary moments in people’s lives – using a phone, having a dance, going to read more

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Pad Ripping Fun

I’ve written a few posts about my on-going bladder issues and about how wearing pull up incontinence pads helps me manage this and feel more confident.

There’s one slight issue though. It’s not their bulkiness or the fact that some … read more

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