Challenges

Yaska Sahara - Mama and Me

At the start of lockdown I was sent a short story about the experience of growing up with a parent with Tourettes by a young writer called Yaska Sahara. I found the piece incredibly moving and it was a perspective … read more

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Keyworker Kids - A Revised Story

Almost exactly six months ago I created a story for my three-year-old niece Bean about her mum’s job as a doctor, to explain the coronavirus pandemic and what it would mean for our family.

As infection rates increase again, and … read more

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Serena Bhandari - Disabled Students, Know Your Rights

It’s the beginning of a new academic year and for students starting back or returning to university or college, COVID-19 makes this a start like no other. In this guest post, regular contributor and recent graduate Serena shares what she … read more

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How to be a good friend to someone with Tourettes

A new academic year is beginning. Children and young people are returning to school, students will be starting at University, and many adults will be settling back into work after the disruption of COVID-19. This post is for people who … read more

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Acceptance and Identity - Seven Stages

Yesterday morning, just before work, I was checking my Twitter timeline when a tweet caught my eye. It was from disability blogger and occupational therapist Georgia Vine asking for information about any model that’s useful for explaining the stages of … read more

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The Agony Shelf

Here at Touretteshero we have what we call the ‘Ideas Shelf’. It’s an imaginary shelf and we put ideas for future projects, events or services on it. These ideas are then ready to be taken off the shelf when the … read more

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Blustery Tree

It’s been a long, busy week and for a good part of it I was managing a heady mix of pain and nausea. One of these on their own I can usually cope with, but both together is overwhelming.

This … read more

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Not NICE At All

Since 2016 I’ve experienced chronic pain in my lower back and hips. The quality and intensity of this pain changes, but I’m very rarely pain-free. Left unmanaged, this pain has a profound effect on my ability to think, concentrate, work … read more

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Balancing Realities

After an extraordinary five months, many aspects of life are spinning back into some sort of normality. For most people there might be some minor changes to how they live, work or socialise, but I get the impression that some … read more

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Long Awaited Squeeze

On Sunday 15th March I went swimming with my niece Bean and her dad, my brother-in-law, King Russell. Afterwards we came back to the castle and watched a film together. What I didn’t know as Bean and I sat … read more

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