Challenges

Peace on the Floor

I’ve written frequently about pain recently, and also mentioned that I’ve been feeling sick a lot too. To start with, my nausea was just in the mornings and would get better after I’d been up for an hour or … read more

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4.18am Again

This is hard. Really fucking hard.

It’s 4.18am and I’m awake again.

I’m sore and tired and lonely. I feel sick and fed up.

For months and months, pain and nausea have been eroding my sleep, which was already … read more

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To The Edges And Beyond

Years ago I was into drawing the connections between different objects in my room. I’d map them, usually using myself as the starting point.

Tonight as I lay in bed trying to sleep, the coiled ball of pain that sits … read more

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Overtaken By A Baby

My niece is five months old now and she’s amazing company. We hang out together most days and I absolutely adore her. It’s amazing watching her grow and develop. But as the months pass I can feel myself getting strangely … read more

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My Boom and Bust Body

I’ve written a lot recently about how I’m adapting to experiencing chronic pain.

While this isn’t straightforwardly related to Tourettes, I’ve started to appreciate that my motor tics have put a lot of physical pressure on my body for a … read more

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A Rainbow of Relief  

I’m taking regular pain killers at the moment because of the chronic pain I’m experiencing in my back and hips – they’re essential for helping me get through the day and feel comfortable.

But I’m not brilliant at remembering to … read more

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Light Bulb Moments 

I’m finding it increasingly painful to switch my bedside light on and off. My support workers have been doing it for me most of the time but in the middle of the night I prefer to do it for myself.… read more

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Bed Space

It’s been a hard week for me from a pain perspective and I’ve spent a lot of time in bed as a result. During the day this all feels quite cosy, people pop in and out, and light pours in … read more

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New Order At The Castle

What’s the best way to manage jet lag? Turn’s out that epic re-arranging of furniture’s what works best for me.

We landed back in the UK this morning following an overnight flight from New York where we’ve been for the … read more

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Writing It Out

It’s 4.27am.
The castle is still.
I am not.
But I never am.

The room is gently lit by my bedside lamp, and now by the glow of my computer screen as I type.

The garden outside is lit by … read more

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