Challenges

Stop Talking And Start Relaxing 2019

Back in April 2018 I wrote a post called Stop Talking And Start Relaxing, sharing my frustrations about the pace of change surrounding relaxed theatre performances. These are performances that make a number of small, low- or no-cost … read more

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Extreme Catheters

I’ve been recruiting for new support workers and have met some excellent people in the process. Last night was my first night with Chris, one of my new overnight support workers.

I like being supported by a mix of men … read more

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‘That One’ Snap

Airports can be fraught places for everyone. I find them particularly stressful, unsure if I’ll be able to get into my seat, go to the toilet, be shushed, ignored or dropped. They are, though, part of being … read more

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Body of Pain

It feels as if my body’s gone on strike. Or maybe more than that, it’s as if it’s engaged in some sort of direct action against me.

Since January I’ve been swimming at my local hydrotherapy pool on most days. … read more

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Nah, Nu-nu-nu-nah, Nu-nu-nu-nah, Nu-nu-nu-nah, Nu-nu-nausea

For the last few years I’ve been struggling with feeling sick a lot and there was a long period when I used be sick every time I ate anything. A few months ago a dietician at my local hospital put … read more

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Challenging Myself

I feel really sad.
A deep churning sadness.
A very familiar and crushing mix of shame, frustration and exhaustion.

It’s a mix of feelings I can’t remember ever not being present. Experience tells me these feelings won’t last with the … read more

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Feet Made For Marking

When I was a kid the soles of my feet were often covered in scratches. I wasn’t a big fan of wearing shoes and I didn’t have the most sensitive of soles either.

Nowadays my leg tics mean I’m not … read more

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Low Level Angst Sucks

I’ve been back in the UK for a couple of days, long enough to notice one big difference between here and the US.

It’s not in portion size, or car size or even political-lie size. In fact it’s not something … read more

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A Tale of Tears and Two Countries

I realised in the cab on the way back from Heathrow that there aren’t many flights that I’ve done without Leftwing Idiot. On most journeys I’ve had a dedicated support worker too, but Leftwing Idiot’s almost always been there … read more

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A Shocking Call To Action

We’re just settling into the second week of the Festival of Rest and Resistance which I’ve curated at Battersea Arts Centre. As a two-week festival it’s the longest event we’ve programmed and we’re trying to make sure we practise … read more

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