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Outrage or Inspiration?

In the last week or so I’ve seen lots of memes, videos and photos online that relate to disability. All of these have shown ordinary moments in people’s lives – using a phone, having a dance, going to read more

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Ninety Layers of Me

Back in October we were in Inverness working with young creatives on Hacks For The Future, it was brilliant but the days were pretty exhausting both physically and mentally and in the evenings my pain was often very intense. … read more

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Tubi-Glove

My chest-banging tic has been around for almost a decade. When it began, my chest bruised a lot and I tried loads of different ways of managing it. I tried restricting the movement of my arm, Habit Reversal Training and … read more

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Twelve Pictures To Tell It All

Happy New Year! We’ve made it to the end of 2018. For the Touretteshero team the year’s been crammed full of activity, events, touring and TV. As with most years there have been some incredible highs, and some painful lows … read more

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Brewing In Battersea

I’m exhausted. Deeply, unrelentingly tired. But I’m also buzzing with joy, my brain awash with powerful, colourful memories of celebration and solidarity from the last few days of Brewing In Battersea.

Over two days and one night we mixed … read more

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Three Good Hours - A Public Announcement

I woke just now with a start and a sharp intake of breath. After a moment or two I began the urgent shuffle onto my commode to let my wee slowly find its way out. But I started thinking about … read more

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My Thanks and I

So, I knew we’d made a documentary. I’d put the very first budget together, been involved in choosing the team, chatted to camera several times and watched a number of different edits, providing detailed comments about each one. But it … read more

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Me, My Mouth and I

In November 2015, when a woman in a derelict building in west London started a countdown, my heart raced – as I’m sure a print-out from my pacemaker would testify. Kirsty Wark had just emerged from round a corner … read more

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My Beds

Twenty years ago Tracey Emin made her iconic work ‘My Bed’.

It’s also twenty years since I swapped my childhood single bed for a double bed.

As I wrote back in February I’ve just gone back to a using … read more

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#INeedStraws

Back in March I wrote about the threatened ban on plastic straws. In it I responded to a lot of the questions non-disabled people were asking when disabled people told them they really do need straws. So if you’re … read more

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