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Me, My Mouth and I

In November 2015, when a woman in a derelict building in west London started a countdown, my heart raced – as I’m sure a print-out from my pacemaker would testify. Kirsty Wark had just emerged from round a corner … read more

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#INeedStraws

Back in March I wrote about the threatened ban on plastic straws. In it I responded to a lot of the questions non-disabled people were asking when disabled people told them they really do need straws. So if you’re … read more

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Drawing On My Web Of Support

I’ve been on holiday in Spain with Fran for almost a week now. Tomorrow will be our last day and naturally my mind’s started to shift to life back home, particularly the week ahead. When I looked at my support … read more

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Living the Dream

I’m lying by the pool with the Spanish sun soaking into my body. Fran and I arrived in Mallorca yesterday and we’re here for a week of total rest – writing blog posts is the only work-related activity permitted and … read more

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Yellow Wins

A few weeks ago I went to speak at a National Trust event in Derby, which turned out to be a really interesting experience. Unexpectedly I also got to indulge one of my biggest passions – talking about wheelchairs.

The … read more

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The Brilliant Blue Time Machine

I’ve been in bed for about five minutes and my body’s just starting to relax, with my incredibly soft duvet wrapped around me. But just before I slid into bed I had an unexpectedly emotional moment.

I’d been feeling quite … read more

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Cartoon Pain Scale

The Internet’s full of distractions, from cute cat videos to nostalgic quizzes.

Last night I saw an alternative pain scale that made me laugh – someone had used works of art to replace the usual 1-10 of pain.

I liked … read more

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Face Fairy

Last year Leftwing Idiot bought me some lavender spray to help me sleep.

My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.… read more

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From Spine To Sky - Via The Lamp-Post

I studied drawing at art college and really got into mapping the world around me in various ways. I was particularly interested in how objects, people and spaces connect.

I’ve been in a lot of pain today so I’ve stayed … read more

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Kitchen Catastrophe

A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.

The surveyor was late and while we waited I … read more

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