Because of the chronic pain I’m experiencing, which I’ve written about a lot recently, I’m under the care of my local pain clinic and my GP, and I’ve got a range of medications to help me manage the pain.
There … read more
It wouldn’t take a very detailed reading of this blog to discover that I haven’t been very well for the last few months. I’ve been adjusting to life with chronic pain, nausea and fatigue. It doesn’t sound like … read more
My Gran loved all sorts of sayings, like, “Don’t throw the baby out with the bath water”, “Let the dog see the rabbit” or “A watched pot never boils.”
But she particularly loved sky-based sayings: “There’s enough blue sky to … read more
When we set up Touretteshero almost eight years ago one of our big aims was to put on exciting inclusive events. I know from my own experience how important it is to have positive experiences to draw on when things … read more
It’s been a hard week for me from a pain perspective and I’ve spent a lot of time in bed as a result. During the day this all feels quite cosy, people pop in and out, and light pours in … read more
Lily, Leftwing Idiot and I spent this morning at Coney Island on the edge of Brooklyn, in fact on the edge of the United States. Coney’s a coastal area with fun fairs, beaches, arcades and the enormous expanse of the … read more
This morning a crumpled envelope covered in stars made it through the castle’s letterbox. It looked as if it’d travelled a very long way indeed.
I was intrigued, and when I opened it I squealed with excitement. It was instantly … read more
I’m sitting on a train, my laptop on my legs, the screen flickering with sunlight and passing reflections. Looking up occasionally, I’m catching glimpses of yellow fields with neat hedgerows, or small towns with a muddle of red roofs, chimneys, … read more
I’m lying on the bed in my accessible studio flat in Edinburgh. We arrived in the city yesterday. After a long day of traveling and months of preparation it felt incredible to be here at last, and even more incredible … read more
It’s nearly midnight and I can’t sleep. A weird mixture of pain, excitement and apprehension has left me feeling the sort of nervous excitement you get before the first day at a new school. But it’s not that sort of … read more