Last year Leftwing Idiot bought me some lavender spray to help me sleep.
My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.… read more
I studied drawing at art college and really got into mapping the world around me in various ways. I was particularly interested in how objects, people and spaces connect.
I’ve been in a lot of pain today so I’ve stayed … read more
A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.
The surveyor was late and while we waited I … read more
Because of the chronic pain I’m experiencing, which I’ve written about a lot recently, I’m under the care of my local pain clinic and my GP, and I’ve got a range of medications to help me manage the pain.
There … read more
It wouldn’t take a very detailed reading of this blog to discover that I haven’t been very well for the last few months. I’ve been adjusting to life with chronic pain, nausea and fatigue. It doesn’t sound like … read more
My Gran loved all sorts of sayings, like, “Don’t throw the baby out with the bath water”, “Let the dog see the rabbit” or “A watched pot never boils.”
But she particularly loved sky-based sayings: “There’s enough blue sky to … read more
When we set up Touretteshero almost eight years ago one of our big aims was to put on exciting inclusive events. I know from my own experience how important it is to have positive experiences to draw on when things … read more
It’s been a hard week for me from a pain perspective and I’ve spent a lot of time in bed as a result. During the day this all feels quite cosy, people pop in and out, and light pours in … read more
Lily, Leftwing Idiot and I spent this morning at Coney Island on the edge of Brooklyn, in fact on the edge of the United States. Coney’s a coastal area with fun fairs, beaches, arcades and the enormous expanse of the … read more
This morning a crumpled envelope covered in stars made it through the castle’s letterbox. It looked as if it’d travelled a very long way indeed.
I was intrigued, and when I opened it I squealed with excitement. It was instantly … read more