My sister had a BBQ yesterday. It was a small gathering of about fifteen close friends. I could see that her two-year-old daughter Bean was very excited by the party but also a bit overwhelmed by so many lovely people … read more
It feels as if my body’s gone on strike. Or maybe more than that, it’s as if it’s engaged in some sort of direct action against me.
Since January I’ve been swimming at my local hydrotherapy pool on most days. … read more
Leftwing Idiot’s been away for over a month. We last saw him in New York in April where we’d been showing our film ‘Me, My Mouth and I’ at a film festival.
This morning Jen and I … read more
Almost a decade ago I had a conversation that changed my life – I was sitting in Leftwing Idiot’s kitchen talking about my intensifying tics and he described my Tourettes as a “language-generating machine” and told me that not … read more
I spend very little time on my own. To live an independent, happy, safe, creative life I need other people’s support and a team of personal assistants and support workers help me at work, at home and overnight.… read more
I’m writing this post from my room in an old, elegant hotel on Broadway, New York. Spring sunshine, streaming in through the window is broken up by the wooden blinds, casting fragmented light and shadows across the smooth floor.
We … read more
I’ve written a lot over the last year about my increasing pain and decreasing energy. I’ve shared my concerns about the impact on my work, but I’ve not talked about the adjustments we’ve been making so I can keep … read more
At work today I had a ‘ticcing fit’. I lost all regular speech but my vocal tics continued. Much to my surprise and that of my colleagues a strange story emerged. Here’s my Tourettes-generated fable:
“There was a table … read more
Last night we had our opening performance of Not I here in Berlin. The show went well and the audience seemed to enjoy it.
It was quite late when we finished and none of us had eaten so the … read more
I’ve just done something really difficult. It wasn’t learning a complicated text, performing in front of thousands or completing a cryptic crossword. And it wasn’t something that I feel proud of.
I pissed myself.
Or to be precise I deliberately … read more