Back in July, researcher Evie wrote a guest post about her project looking at tics and mealtimes. Back then she was recruiting young people to contribute their experiences. She’s back today but this time she’s looking for parent perspectives – … read more
It’s half term week and families across the UK will be looking for ways to keep everyone entertained. In non-pandemic times the Touretteshero team travel a lot and, in the process, we’ve developed some tic-inspired games to pass the time. … read more
It’s been a rainy, grey day in London, but my afternoon got brighter when my three-year old niece Bean popped in with King Russell for a quick play in the garden on the way home from nursery.
Because her mum’s … read more
At the weekend I met my sister and my niece Bean at a playground we haven’t visited since Bean was tiny. It was lovely to be back in a park playing together. I was wearing a mask and being careful … read more
Almost exactly six months ago I created a story for my three-year-old niece Bean about her mum’s job as a doctor, to explain the coronavirus pandemic and what it would mean for our family.
As infection rates increase again, and … read more
A new academic year is beginning. Children and young people are returning to school, students will be starting at University, and many adults will be settling back into work after the disruption of COVID-19. This post is for people who … read more
On Sunday 15th March I went swimming with my niece Bean and her dad, my brother-in-law, King Russell. Afterwards we came back to the castle and watched a film together. What I didn’t know as Bean and I sat … read more
I’ve seen a few social media posts recently from parents of children with tics who are yet to receive a diagnosis. I imagine the pandemic will have slowed this process down even further and suspect there will be families having … read more
Normally when I write this blog, I’m writing for everyone – all ages, all backgrounds, with all sorts of bodies and minds. But this post is different because I’ve written it specifically for children and young people who are at … read more
Three years ago today, on the morning of Wednesday 14th June 2017, the country woke to the news of a devastating fire at Grenfell Tower. Later we would learn that 72 people, 18 of them children, had lost their … read more