It’s Sunday evening, the end of a long and difficult week. But rather than feeling gloomy I feel hopeful, rescued by an incredible piece of theatre and a slice of my own advice.
The week kicked off with a hospital … read more
A couple of days ago I was waiting to pick up some medication in a busy hospital pharmacy. There was a boy aged about nine also waiting. I pulled up in my wheelchair and waited nearby.
The boy couldn’t take … read more
The Internet’s full of distractions, from cute cat videos to nostalgic quizzes.
Last night I saw an alternative pain scale that made me laugh – someone had used works of art to replace the usual 1-10 of pain.
I liked … read more
It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.
Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing … read more
Dear Jacqueline Wilson,
I’ve got a confession to make: I, a thirty-seven-year-old woman, spent the Easter weekend watching the CBBC adaptation of your book Katy (a retelling of the What Katy Did stories). I’m sure I’m not the only adult … read more
In one week’s time our production of Samuel Beckett’s ‘Not I’ opens at Battersea Arts Centre in London. We’ve been in rehearsals this week and it’s been great getting back into the play. I’ve particularly enjoyed rehearsing with Charmaine, our … read more
I’m lying in bed, my soft duvet enveloping my exhausted body. This weekend the Touretteshero team’s been working flat out on Heroes of the Imagination at Southbank Centre’s Imagine Children’s Festival.
Over the last two days over 2000 children and … read more
Because lots of my support workers are still away after the holidays I’ve had a few more gaps in my support than normal. Fat Sister and King Russell have stepped in to help, and last night I went to stay … read more
I’m quite surprised to find myself at the last day of 2017. There are a million clichés about time passing quickly, and I’m loath to mention any of them, but this year really does feel as if it’s gone by … read more
My niece, affectionately known as Squidge, is now six months old and she’s been desperately trying to stand for the last few weeks.
I’ve just got back from performing at the No Limits Festival in Berlin. Before we went … read more