Years ago I was into drawing the connections between different objects in my room. I’d map them, usually using myself as the starting point.
Tonight as I lay in bed trying to sleep, the coiled ball of pain that sits … read more
Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.
Listening to audio books is something I’ve been doing a … read more
I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position.
Then, a couple of weeks ago after a particularly bad … read more
I’m finding it increasingly painful to switch my bedside light on and off. My support workers have been doing it for me most of the time but in the middle of the night I prefer to do it for myself.… read more
It’s been a hard week for me from a pain perspective and I’ve spent a lot of time in bed as a result. During the day this all feels quite cosy, people pop in and out, and light pours in … read more
The castle is still.
I am not.
But I never am.
The room is gently lit by my bedside lamp, and now by the glow of my computer screen as I type.
The garden outside is lit by … read more
As a child I used to have a bath every night. We didn’t have a shower when I was little so soaking in the tub was a regular part of my bedtime routine.
But I don’t often have baths any … read more
There are some tough things about having Tourettes, and for me one of them is disrupted sleep.
At 5:30 this morning I woke up having a ‘ticcing fit’. At first I wasn’t too worried about dropping off again, but it … read more
Lying in bed last night I was exceptionally tired but finding it hard to sleep because of my wriggly body. My blind was open a little and the orange light from the lamp-post outside was creeping in through the gap.… read more
Yesterday morning I woke up after a much-needed sleep. It was 10am and I was really impressed that I’d slept so late, something I never normally do. The sun was pouring through a crack in my blind and my tics … read more