When I was little my Gran would often talk about the ‘dawn chorus’, that moment in the early morning when the sun starts to rise and the birds begin to stir and start singing. She left me with the strong … read more
I’ve written frequently about pain recently, and also mentioned that I’ve been feeling sick a lot too. To start with, my nausea was just in the mornings and would get better after I’d been up for an hour or … read more
This is hard. Really fucking hard.
It’s 4.18am and I’m awake again.
I’m sore and tired and lonely. I feel sick and fed up.
For months and months, pain and nausea have been eroding my sleep, which was already … read more
Years ago I was into drawing the connections between different objects in my room. I’d map them, usually using myself as the starting point.
Tonight as I lay in bed trying to sleep, the coiled ball of pain that sits … read more
Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.
Listening to audio books is something I’ve been doing a … read more
I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position.
Then, a couple of weeks ago after a particularly bad … read more
I’m finding it increasingly painful to switch my bedside light on and off. My support workers have been doing it for me most of the time but in the middle of the night I prefer to do it for myself.… read more
It’s been a hard week for me from a pain perspective and I’ve spent a lot of time in bed as a result. During the day this all feels quite cosy, people pop in and out, and light pours in … read more
The castle is still.
I am not.
But I never am.
The room is gently lit by my bedside lamp, and now by the glow of my computer screen as I type.
The garden outside is lit by … read more
As a child I used to have a bath every night. We didn’t have a shower when I was little so soaking in the tub was a regular part of my bedtime routine.
But I don’t often have baths any … read more