From my bedroom window I can see three majestic trees, their silhouettes looming large in my familiar and treasured view. Right now it’s the very end of dusk and they’ve almost vanished into the darkness.
But while they might be … read more
It’s been a very sunny day, and this morning was particularly warm and glorious.
Fat Sister, King Russell and their two-year-old daughter Bean came over first thing and we sat in the garden enjoying the weather and the prospect … read more
Fat Sister, King Russell and Bean popped in earlier. I had my Telecare pendant on because of a brief gap in my support. The pendant was round my neck and I’d totally forgotten it was there. Bean greeted me enthusiastically, … read more
At work today I had a ‘ticcing fit’. I lost all regular speech but my vocal tics continued. Much to my surprise and that of my colleagues a strange story emerged. Here’s my Tourettes-generated fable:
“There was a table … read more
My nineteen-month-old niece Bean can walk – she’s been able to since she was nine months old! Tonight, though, she decided to go back to crawling – not baby crawling but crawling aunty-style.
We’d been playing in her room on … read more
Visitors to the castle would be forgiven for thinking that I’m really into pigs, whether because of the extravagantly decorated dog toys pigs lined up on my shelves, or the many tiny pig stickers that cover my walls and skirting … read more
It’s my support worker Ellie’s birthday. She was supporting last night too, so we were together as the clock struck midnight and she turned twenty-five.
At that exact moment Ellie was helping me with my pre-bed catheter and my tics … read more
This year Touretteshero has teamed up with television’s Liz Carr to bring you an urgent Christmas Appeal.
According to a survey by SCOPE, a staggering 67% of the UK population feel uncomfortable talking to disabled people – this is … read more
Although it’s only be the fourth day of December, my tics woke up in a festive
mood. I was involuntarily singing ‘The Twelve Days of Christmas’ but with slightly
less conventional lyrics:
“On the first day of Christmas, … read more
After two weeks away, working pretty much every day on Hacks For The Future, it feels super-lovely to be back at home with a few days off.
Today’s been great, mainly spent pottering around, tidying, washing and getting the … read more