Fat Sister, King Russell and Bean popped in earlier. I had my Telecare pendant on because of a brief gap in my support. The pendant was round my neck and I’d totally forgotten it was there. Bean greeted me enthusiastically, … read more
At work today I had a ‘ticcing fit’. I lost all regular speech but my vocal tics continued. Much to my surprise and that of my colleagues a strange story emerged. Here’s my Tourettes-generated fable:
“There was a table … read more
My nineteen-month-old niece Bean can walk – she’s been able to since she was nine months old! Tonight, though, she decided to go back to crawling – not baby crawling but crawling aunty-style.
We’d been playing in her room on … read more
Visitors to the castle would be forgiven for thinking that I’m really into pigs, whether because of the extravagantly decorated dog toys pigs lined up on my shelves, or the many tiny pig stickers that cover my walls and skirting … read more
It’s my support worker Ellie’s birthday. She was supporting last night too, so we were together as the clock struck midnight and she turned twenty-five.
At that exact moment Ellie was helping me with my pre-bed catheter and my tics … read more
This year Touretteshero has teamed up with television’s Liz Carr to bring you an urgent Christmas Appeal.
According to a survey by SCOPE, a staggering 67% of the UK population feel uncomfortable talking to disabled people – this is … read more
Although it’s only be the fourth day of December, my tics woke up in a festive
mood. I was involuntarily singing ‘The Twelve Days of Christmas’ but with slightly
less conventional lyrics:
“On the first day of Christmas, … read more
After two weeks away, working pretty much every day on Hacks For The Future, it feels super-lovely to be back at home with a few days off.
Today’s been great, mainly spent pottering around, tidying, washing and getting the … read more
Earlier this evening Leftwing Idiot and I were chatting on the phone when he said something that made me draw breath. For a moment it felt like my brain stalled, jarred by a sad truth in an ordinary conversation.
We … read more
Lily’s doing my overnight support this evening – we’ve finished brushing our teeth and we’re getting ready for bed.
After doing my teeth she helped me transfer out of my wheelchair and onto the toilet. While I coaxed my wee … read more