Challenges

Crawl of Shame

We’ve been in Zurich for the last few days. The flight back yesterday morning was only an hour and twenty minutes. But for a wheelchair user flying is nearly always stressful and yesterday’s flight was no exception.

For the last … read more

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Laughs From The Past

Earlier this evening Leftwing Idiot and I were chatting on the phone when he said something that made me draw breath. For a moment it felt like my brain stalled, jarred by a sad truth in an ordinary conversation.

We … read more

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Face Fairy

Last year Leftwing Idiot bought me some lavender spray to help me sleep.

My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.… read more

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Baby Fatigue

It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.

Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing read more

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From Spine To Sky - Via The Lamp-Post

I studied drawing at art college and really got into mapping the world around me in various ways. I was particularly interested in how objects, people and spaces connect.

I’ve been in a lot of pain today so I’ve stayed … read more

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Kitchen Catastrophe

A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.

The surveyor was late and while we waited I … read more

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Can You Stop It?

Our last morning in Portland was a bright one. We enjoyed a relaxed start, packing slowly and getting ready for the long trip back to the UK. By mid-afternoon we were on the first leg of our journey, a short … read more

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A Close Shave

While we’re here in Portland, Leftwing Idiot, Lily and I are sharing an apartment-sized hotel suite. I wrote the other day about the difficulties I’ve been having weeing and the bladder stimulating device I’ve been given to try out.… read more

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In Praise of Gummies

Yesterday we flew for the few hours it takes to get from New York City to Portland. This is our first time in the state of Oregon and we passed over snow capped mountains and dense forests on the way. … read more

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A Sorry Day

When I was at college I used to find seminars really stressful. When I wasn’t worrying about the noises and movements I was making I was battling to stay awake. Dark, warm rooms and the hypnotic whir of a projector … read more

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