Friends & Family

See My Chair, See Me

Lily’s doing my overnight support this evening – we’ve finished brushing our teeth and we’re getting ready for bed.

After doing my teeth she helped me transfer out of my wheelchair and onto the toilet. While I coaxed my wee read more

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Cannon Beach

The last few days have been busy– preparing for and preforming my stand-up show here in Portland, and running a children’s event yesterday. Today was a day off, and as the weather was beautiful, Leftwing Idiot, Lily and I decided … read more

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Rachel’s Last Night

Almost exactly three years ago the children’s organisation Kids Company suddenly closed. A couple of days later I was introduced to Rachel who’d worked for them as an occupational therapist. She’d lost her job out of the blue and was … read more

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I Smell of Piss and Other News

When I started this blog just over eight years ago I pledged to tread the fine line between honesty and self-pity. The post I’m about to write is going to be one that tests how well I can do this … read more

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New Diagnosis

Over the last two years I’ve been experiencing increasing pain in my back and hips as well as in other joints, including my wrists, ankles and shoulders. Along with this almost constant pain I’ve also been having difficulties with nausea … read more

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Babies, Bodies, Biscuits

In one week’s time our production of Samuel Beckett’s ‘Not I’ opens at Battersea Arts Centre in London. We’ve been in rehearsals this week and it’s been great getting back into the play. I’ve particularly enjoyed rehearsing with Charmaine, our … read more

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Not So Ninja

Yesterday I wrote with pride about my stealthy stair-climbing skills as I crept past my niece’s room while she was asleep.

In the morning Fat Sister brought me a slice of peanut butter on toast. Because she’s my sister she … read more

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Ninja Training

Because lots of my support workers are still away after the holidays I’ve had a few more gaps in my support than normal. Fat Sister and King Russell have stepped in to help, and last night I went to stay … read more

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“2017, Year of the Oscillating Grin”

I’m quite surprised to find myself at the last day of 2017. There are a million clichés about time passing quickly, and I’m loath to mention any of them, but this year really does feel as if it’s gone by … read more

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Four Years, Two Tics and Thirty Christmases

Touretteshero’s had a birthday party in the past, and has delivered lots of events, but we’ve never had a team party before, and that’s because until recently we were mainly just a team of two, Leftwing Idiot and me.… read more

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