I’ve lived at the castle for just over eight years. I moved here because my previous lair was up lots of stairs and I had several accidents getting in and out. Even though it was obvious to everyone I needed … read more
It’s my support worker Ellie’s birthday. She was supporting last night too, so we were together as the clock struck midnight and she turned twenty-five.
At that exact moment Ellie was helping me with my pre-bed catheter and my tics … read more
Although it’s only be the fourth day of December, my tics woke up in a festive
mood. I was involuntarily singing ‘The Twelve Days of Christmas’ but with slightly
less conventional lyrics:
“On the first day of Christmas, … read more
In November 2015, when a woman in a derelict building in west London started a countdown, my heart raced – as I’m sure a print-out from my pacemaker would testify. Kirsty Wark had just emerged from round a corner … read more
I’m not sure if or when this post will make it onto the website. I’ve not got a lot to say and what I do have is pretty vague and personal. But I feel compelled to write, so I’m just … read more
It’s just after six in the morning. For the last few days I’ve woken super-early every day. Today though, rather than making myself go back to sleep, I’ve embraced the early start.
The light is incredible, bright sunshine’s already bouncing … read more
A couple of days ago I was waiting to pick up some medication in a busy hospital pharmacy. There was a boy aged about nine also waiting. I pulled up in my wheelchair and waited nearby.
The boy couldn’t take … read more
I have an unusual and fluctuating relationship with the lamp-post I can see from my bedroom window.
I scold, nag and insult it on most nights.
But I also invite it into my bed when it’s cold.
I deride all … read more
If you’re in the UK it’s unlikely to have escaped your attention that there’s a wedding happening today – the marriage of Prince Harry and Meghan Markle.
I’d been expecting this post to be about wedding-related tics and I … read more
I’ve written a fair bit recently about my wee troubles. I’ve been going to the toilet all the time. It’s frustrating enough during the day, but at night it’s horrible and adds a whole extra dimension to my sleeplessness.… read more