The Blog!

Fixed Stare

A couple of days ago I was waiting to pick up some medication in a busy hospital pharmacy. There was a boy aged about nine also waiting. I pulled up in my wheelchair and waited nearby.

The boy couldn’t take … read more

Leave a reply

Cartoon Pain Scale

The Internet’s full of distractions, from cute cat videos to nostalgic quizzes.

Last night I saw an alternative pain scale that made me laugh – someone had used works of art to replace the usual 1-10 of pain.

I liked … read more

Leave a reply

Laughs From The Past

Earlier this evening Leftwing Idiot and I were chatting on the phone when he said something that made me draw breath. For a moment it felt like my brain stalled, jarred by a sad truth in an ordinary conversation.

We … read more

Leave a reply

Face Fairy

Last year Leftwing Idiot bought me some lavender spray to help me sleep.

My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.… read more

Leave a reply

Glowing Up and Down

I have an unusual and fluctuating relationship with the lamp-post I can see from my bedroom window.

I scold, nag and insult it on most nights.
But I also invite it into my bed when it’s cold.

I deride all … read more

Leave a reply

Baby Fatigue

It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.

Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing read more

Leave a reply

From Spine To Sky - Via The Lamp-Post

I studied drawing at art college and really got into mapping the world around me in various ways. I was particularly interested in how objects, people and spaces connect.

I’ve been in a lot of pain today so I’ve stayed … read more

Leave a reply

Kitchen Catastrophe

A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.

The surveyor was late and while we waited I … read more

Leave a reply

See My Chair, See Me

Lily’s doing my overnight support this evening – we’ve finished brushing our teeth and we’re getting ready for bed.

After doing my teeth she helped me transfer out of my wheelchair and onto the toilet. While I coaxed my wee read more

Leave a reply

The U-bends of Windsor

If you’re in the UK it’s unlikely to have escaped your attention that there’s a wedding happening today – the marriage of Prince Harry and Meghan Markle.

I’d been expecting this post to be about wedding-related tics and I … read more

Leave a reply