While my tics might not be part of my conscious thought processes, they definitely reflect the time and cultural references of my childhood, and this means that the stars of 1980’s children’s TV get a strong showing.
Of all these … read more
I’ve been in Milton Keynes today for a meeting: Leftwing Idiot, Will, Lily and I travelled there by train. Even though it’s only a short journey I transferred out of my wheelchair and onto a seat to be a bit … read more
The festive season’s in full swing and I’ve been doing my Christmas shopping. My tics add an extra layer of complexity to this, but it’s not because I have trouble getting to the shops – online shopping sorts that out … read more
When I was little my Gran would often talk about the ‘dawn chorus’, that moment in the early morning when the sun starts to rise and the birds begin to stir and start singing. She left me with the strong … read more
My niece, affectionately known as Squidge, is now six months old and she’s been desperately trying to stand for the last few weeks.
I’ve just got back from performing at the No Limits Festival in Berlin. Before we went … read more
For over a decade Mencap have run Changing Places, an amazing campaign to improve toilet provision for disabled people across the UK.
Changing Places toilets are loos that meet a specific set of criteria – they are much bigger … read more
Two weeks ago we took over of the Barbican Centre’s Pit Theatre and surrounding spaces for two days and a night. I’ve written a detailed account of the event – Brewing in the Basement – and Guardian theatre critic Lyn … read more
I’ve written frequently about pain recently, and also mentioned that I’ve been feeling sick a lot too. To start with, my nausea was just in the mornings and would get better after I’d been up for an hour or … read more
This is hard. Really fucking hard.
It’s 4.18am and I’m awake again.
I’m sore and tired and lonely. I feel sick and fed up.
For months and months, pain and nausea have been eroding my sleep, which was already … read more
Yesterday I stayed in bed all day. After a week of preparation and two days of Brewing In The Basement at the Barbican Centre, my body demanded a break, and for once I listened. I didn’t have a load of … read more