I started working with disabled children in 1999 so I’m celebrating twenty years this year. For some of this time I worked in Lambeth’s Child and Adolescent Mental Health Service (CAMHS) in the Autism and Complex Needs Intervention Support Team… read more
My mum’s from Lancashire, her mum was from Lancashire, and so was her mum and her mum before that. Pretty much all my mum’s relatives still live there, just outside Blackpool, in and around Lytham St Annes.
I was … read more
Online activism can be powerful, as campaigns like #MeToo and #OscarsSoWhite have demonstrated. Hashtags like these can be especially useful in highlighting the shared experiences of a particular group and creating space for solidarity to be given and received. Crucially … read more
At the end of last year I wrote about being laughed at and mimicked while in a hospital waiting room. Today at the same hospital I had a completely different and very lovely experience chatting to two women who were … read more
I’ve written a lot over the last year about my increasing pain and decreasing energy. I’ve shared my concerns about the impact on my work, but I’ve not talked about the adjustments we’ve been making so I can keep … read more
At work today I had a ‘ticcing fit’. I lost all regular speech but my vocal tics continued. Much to my surprise and that of my colleagues a strange story emerged. Here’s my Tourettes-generated fable:
“There was a table … read more
I’ve had issues with my bladder for a long time, but just over a year ago they intensified. Since then I’ve been seeing a specialist neuro-urologist (neuro-uro), and with his help things have got a lot easier – particularly at … read more
My chest-banging tic has been around for almost a decade. When it began, my chest bruised a lot and I tried loads of different ways of managing it. I tried restricting the movement of my arm, Habit Reversal Training and … read more
I’m excited to hand over today’s blog to my friend and voice researcher Sophie Meekings. Sophie’s supported Touretteshero in a number of ways, most recently by volunteering at our big inclusive event Brewing In Battersea. She’s here to let you … read more
My nineteen-month-old niece Bean can walk – she’s been able to since she was nine months old! Tonight, though, she decided to go back to crawling – not baby crawling but crawling aunty-style.
We’d been playing in her room on … read more