A couple of days ago I was waiting to pick up some medication in a busy hospital pharmacy. There was a boy aged about nine also waiting. I pulled up in my wheelchair and waited nearby.
The boy couldn’t take … read more
The Internet’s full of distractions, from cute cat videos to nostalgic quizzes.
Last night I saw an alternative pain scale that made me laugh – someone had used works of art to replace the usual 1-10 of pain.
I liked … read more
Earlier this evening Leftwing Idiot and I were chatting on the phone when he said something that made me draw breath. For a moment it felt like my brain stalled, jarred by a sad truth in an ordinary conversation.
We … read more
Last year Leftwing Idiot bought me some lavender spray to help me sleep.
My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.… read more
I have an unusual and fluctuating relationship with the lamp-post I can see from my bedroom window.
I scold, nag and insult it on most nights.
But I also invite it into my bed when it’s cold.
I deride all … read more
It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.
Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing … read more
I studied drawing at art college and really got into mapping the world around me in various ways. I was particularly interested in how objects, people and spaces connect.
I’ve been in a lot of pain today so I’ve stayed … read more
A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.
The surveyor was late and while we waited I … read more
Lily’s doing my overnight support this evening – we’ve finished brushing our teeth and we’re getting ready for bed.
After doing my teeth she helped me transfer out of my wheelchair and onto the toilet. While I coaxed my wee … read more
If you’re in the UK it’s unlikely to have escaped your attention that there’s a wedding happening today – the marriage of Prince Harry and Meghan Markle.
I’d been expecting this post to be about wedding-related tics and I … read more