Like many people, I’ve been having lots of video meetings for work recently. I experience chronic pain and fatigue which makes it hard to take part in these calls if there aren’t clear agreed expectations.
I was thinking about this … read more
At the end of last week, during a what’s app hang out with Fat Sister, Bean and King Russell, there was a lovely exchange that got me thinking – and making.
Bean asked if my support worker Claire was my … read more
Today, out of the blue, there have been a series of announcements about travel in London that are seriously concerning many disabled people. Moving about this vast city as a disabled person can be tricky with a transport system that’s … read more
On a Friday exactly two months ago, my working week was drawing to an end. It’d been a busy week, full of meetings and rehearsals for a forthcoming tour of our stage show ‘Not I’.
With hindsight there were … read more
Last night I wrote a post while I was in intense pain and struggling to sleep. I wrote to help me focus on what I was feeling and to find a way through. To some extent it worked, and with … read more
The bulk of this post was written on the brink of midnight as I struggled to sleep due to intense pain. It hurt so much that coordinating my movements and focus to type was extremely tricky. I’ve decided to leave … read more
This pandemic’s making everyone re-evaluate their relationship with touch, whether that’s contact with other people, our surroundings, or even our own bodies. Last June I wrote about the role physical touch plays in my life, and for a week I … read more
At the start of lockdown my friends Ruby, Leo and Laura made me an incredible word-search which I had loads of fun completing, so I decided to make one for them. But rather than use words I used combinations of … read more
My family had cats for pretty much my entire childhood so know about the benefits they can be bring, and how individual their personalities are. But until Monkey Cat moved in eight months ago I hadn’t lived with a cat … read more
A month ago, at the start of lockdown, I wrote about the huge amounts of extra time and labour I was having to expend just to meet my basic requirements for safety, health, nutrition, finance and logistics.
I’m re-visiting this, … read more