Last year Leftwing Idiot bought me some lavender spray to help me sleep.
My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.… read more
I have an unusual and fluctuating relationship with the lamp-post I can see from my bedroom window.
I scold, nag and insult it on most nights.
But I also invite it into my bed when it’s cold.
I deride all … read more
It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.
Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing … read more
I studied drawing at art college and really got into mapping the world around me in various ways. I was particularly interested in how objects, people and spaces connect.
I’ve been in a lot of pain today so I’ve stayed … read more
A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.
The surveyor was late and while we waited I … read more
Lily’s doing my overnight support this evening – we’ve finished brushing our teeth and we’re getting ready for bed.
After doing my teeth she helped me transfer out of my wheelchair and onto the toilet. While I coaxed my wee … read more
If you’re in the UK it’s unlikely to have escaped your attention that there’s a wedding happening today – the marriage of Prince Harry and Meghan Markle.
I’d been expecting this post to be about wedding-related tics and I … read more
Our last morning in Portland was a bright one. We enjoyed a relaxed start, packing slowly and getting ready for the long trip back to the UK. By mid-afternoon we were on the first leg of our journey, a short … read more
While we’re here in Portland, Leftwing Idiot, Lily and I are sharing an apartment-sized hotel suite. I wrote the other day about the difficulties I’ve been having weeing and the bladder stimulating device I’ve been given to try out.… read more
The last few days have been busy– preparing for and preforming my stand-up show here in Portland, and running a children’s event yesterday. Today was a day off, and as the weather was beautiful, Leftwing Idiot, Lily and I decided … read more