For over a decade Mencap have run Changing Places, an amazing campaign to improve toilet provision for disabled people across the UK.
Changing Places toilets are loos that meet a specific set of criteria – they are much bigger … read more
Two weeks ago we took over of the Barbican Centre’s Pit Theatre and surrounding spaces for two days and a night. I’ve written a detailed account of the event – Brewing in the Basement – and Guardian theatre critic Lyn … read more
I’ve written frequently about pain recently, and also mentioned that I’ve been feeling sick a lot too. To start with, my nausea was just in the mornings and would get better after I’d been up for an hour or … read more
This is hard. Really fucking hard.
It’s 4.18am and I’m awake again.
I’m sore and tired and lonely. I feel sick and fed up.
For months and months, pain and nausea have been eroding my sleep, which was already … read more
Yesterday I stayed in bed all day. After a week of preparation and two days of Brewing In The Basement at the Barbican Centre, my body demanded a break, and for once I listened. I didn’t have a load of … read more
It wouldn’t take a very detailed reading of this blog to discover that I haven’t been very well for the last few months. I’ve been adjusting to life with chronic pain, nausea and fatigue. It doesn’t sound like … read more
Last week I wrote about how I was coming to the end of a very long and enjoyable audio book. I asked what I should listen to next and was overwhelmed with suggestions – thank you to everyone who recommended … read more
For the last few months this blog’s been dominated by posts about pain and fatigue. Keeping a balance of funny, serious, poignant, political and practical posts has always felt important to me, but it’s hard to … read more
Years ago I was into drawing the connections between different objects in my room. I’d map them, usually using myself as the starting point.
Tonight as I lay in bed trying to sleep, the coiled ball of pain that sits … read more
Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.
Listening to audio books is something I’ve been doing a … read more