The Blog!

Face Fairy

Last year Leftwing Idiot bought me some lavender spray to help me sleep.

My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.… read more

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Glowing Up and Down

I have an unusual and fluctuating relationship with the lamp-post I can see from my bedroom window.

I scold, nag and insult it on most nights.
But I also invite it into my bed when it’s cold.

I deride all … read more

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Baby Fatigue

It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.

Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing read more

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From Spine To Sky - Via The Lamp-Post

I studied drawing at art college and really got into mapping the world around me in various ways. I was particularly interested in how objects, people and spaces connect.

I’ve been in a lot of pain today so I’ve stayed … read more

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Kitchen Catastrophe

A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.

The surveyor was late and while we waited I … read more

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See My Chair, See Me

Lily’s doing my overnight support this evening – we’ve finished brushing our teeth and we’re getting ready for bed.

After doing my teeth she helped me transfer out of my wheelchair and onto the toilet. While I coaxed my wee read more

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The U-bends of Windsor

If you’re in the UK it’s unlikely to have escaped your attention that there’s a wedding happening today – the marriage of Prince Harry and Meghan Markle.

I’d been expecting this post to be about wedding-related tics and I … read more

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Can You Stop It?

Our last morning in Portland was a bright one. We enjoyed a relaxed start, packing slowly and getting ready for the long trip back to the UK. By mid-afternoon we were on the first leg of our journey, a short … read more

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A Close Shave

While we’re here in Portland, Leftwing Idiot, Lily and I are sharing an apartment-sized hotel suite. I wrote the other day about the difficulties I’ve been having weeing and the bladder stimulating device I’ve been given to try out.… read more

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Cannon Beach

The last few days have been busy– preparing for and preforming my stand-up show here in Portland, and running a children’s event yesterday. Today was a day off, and as the weather was beautiful, Leftwing Idiot, Lily and I decided … read more

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