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Changing Places Means Changing Attitudes

For over a decade Mencap have run Changing Places, an amazing campaign to improve toilet provision for disabled people across the UK.

Changing Places toilets are loos that meet a specific set of criteria – they are much bigger … read more

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A Monument To Moments

Two weeks ago we took over of the Barbican Centre’s Pit Theatre and surrounding spaces for two days and a night. I’ve written a detailed account of the event – Brewing in the Basement – and Guardian theatre critic Lyn … read more

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Peace on the Floor

I’ve written frequently about pain recently, and also mentioned that I’ve been feeling sick a lot too. To start with, my nausea was just in the mornings and would get better after I’d been up for an hour or … read more

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4.18am Again

This is hard. Really fucking hard.

It’s 4.18am and I’m awake again.

I’m sore and tired and lonely. I feel sick and fed up.

For months and months, pain and nausea have been eroding my sleep, which was already … read more


“Remember, Remember, The Lamp-Post Hates November”

Yesterday I stayed in bed all day. After a week of preparation and two days of Brewing In The Basement at the Barbican Centre, my body demanded a break, and for once I listened. I didn’t have a load of … read more

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The Barbican Got Brewed!

It wouldn’t take a very detailed reading of this blog to discover that I haven’t been very well for the last few months. I’ve been adjusting to life with chronic pain, nausea and fatigue. It doesn’t sound like … read more

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Still Bill

Last week I wrote about how I was coming to the end of a very long and enjoyable audio book. I asked what I should listen to next and was overwhelmed with suggestions – thank you to everyone who recommended … read more

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Daunting Doctors

For the last few months this blog’s been dominated by posts about pain and fatigue. Keeping a balance of funny, serious, poignant, political and practical posts has always felt important to me, but it’s hard to … read more

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To The Edges And Beyond

Years ago I was into drawing the connections between different objects in my room. I’d map them, usually using myself as the starting point.

Tonight as I lay in bed trying to sleep, the coiled ball of pain that sits … read more

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In Bed With Stephen & Sherlock

Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.

Listening to audio books is something I’ve been doing a … read more