Last month I wrote excitedly about my new legs, not my actual legs but the new shock-absorbing frog legs that NHS wheelchair services were testing on my chair.
They’re brilliant and make for a much more comfortable ride, and … read more
I’ve been back in the UK for a couple of days, long enough to notice one big difference between here and the US.
It’s not in portion size, or car size or even political-lie size. In fact it’s not something … read more
There was something about the light in my kitchen just now that triggered a wave of contentment in me. My flat feels still, calm, and easy to be in.
It’s just before 8am and I’ve had an unsettled night’s sleep … read more
I realised in the cab on the way back from Heathrow that there aren’t many flights that I’ve done without Leftwing Idiot. On most journeys I’ve had a dedicated support worker too, but Leftwing Idiot’s almost always been there … read more
It’s our last day in New York, the sun’s been shining and the sky’s been a bright, clear blue. Our hotel is really close to Central Park and we walked across it, grabbed a breakfast juice, and headed to the … read more
I’m writing this post from my room in an old, elegant hotel on Broadway, New York. Spring sunshine, streaming in through the window is broken up by the wooden blinds, casting fragmented light and shadows across the smooth floor.
We … read more
My two year old niece Bean looked at my feet and said:
“No, Aunty Touretteshero, not needed.”
She was right of course; I didn’t really need to be wearing flippers in the house, though as a wheelchair user I could … read more
Over the last few years I’ve had increasing issues with pain and fatigue. I’ve come to appreciate how crucial rest and pacing can be, but that doesn’t mean I’m always good at putting them into practice.
Over the last … read more
We’re just settling into the second week of the Festival of Rest and Resistance which I’ve curated at Battersea Arts Centre. As a two-week festival it’s the longest event we’ve programmed and we’re trying to make sure we practise … read more
I’ve always been a big fan of bouncing.
Jumping up and down on the spot was something I did from a very early age and it was probably a very early motor tic.
Despite having pretty rubbish coordination when … read more