A couple of days ago I got an unexpected call from my Local Authority’s Adult Social Care Community Review Team (what a mouthful!) The woman I spoke to was very friendly and explained that she needed to visit me to … read more
Because of the chronic pain I’m experiencing, which I’ve written about a lot recently, I’m under the care of my local pain clinic and my GP, and I’ve got a range of medications to help me manage the pain.
There … read more
For the last year-and-a-half I’ve been experiencing chronic pain in my back and hips which often keeps me awake at night. Despite having written about it a lot, I still haven’t worked out how to describe it effectively to other … read more
I delivered a training session today for a media company who are making a documentary about Tourettes.
Often when I’m training people on issues relating to inclusion and equality I talk about the need to reduce ‘faff’ around disability. My … read more
For over a decade Mencap have run Changing Places, an amazing campaign to improve toilet provision for disabled people across the UK.
Changing Places toilets are loos that meet a specific set of criteria – they are much bigger … read more
Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.
Listening to audio books is something I’ve been doing a … read more
I’ve written a lot recently about how I’m adapting to experiencing chronic pain.
While this isn’t straightforwardly related to Tourettes, I’ve started to appreciate that my motor tics have put a lot of physical pressure on my body for a … read more
I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position.
Then, a couple of weeks ago after a particularly bad … read more
I’m taking regular pain killers at the moment because of the chronic pain I’m experiencing in my back and hips – they’re essential for helping me get through the day and feel comfortable.
But I’m not brilliant at remembering to … read more
I’m finding it increasingly painful to switch my bedside light on and off. My support workers have been doing it for me most of the time but in the middle of the night I prefer to do it for myself.… read more