My neuro urology appointment (a specialism within medicine that looks after how the bladder and brain work together) got off to a very wet start this morning. But the liquid being spilt wasn’t wee, it was tears.
I’ve been having … read more
A few weeks ago I had an MRI scan of my back that identified a couple of issues. I then went on holiday, and last weekend was dominated by my birthday celebrations. During this time the scan and the … read more
I’m currently on holiday with Fran. We’re staying at an all-inclusive resort in Spain with a large pool, clean accessible rooms, delicious food and drink available throughout the day, and it’s idyllic!
I’m here for a proper rest after months … read more
My body’s buzzing again, but not with the sensation of my bladder buzzer. This time it’s a new device that I’ve just been given by the pain clinic. I wasn’t able to use it straightaway because I’ve got a … read more
I’m not sure if or when this post will make it onto the website. I’ve not got a lot to say and what I do have is pretty vague and personal. But I feel compelled to write, so I’m just … read more
A couple of days ago I was waiting to pick up some medication in a busy hospital pharmacy. There was a boy aged about nine also waiting. I pulled up in my wheelchair and waited nearby.
The boy couldn’t take … read more
Earlier this evening Leftwing Idiot and I were chatting on the phone when he said something that made me draw breath. For a moment it felt like my brain stalled, jarred by a sad truth in an ordinary conversation.
We … read more
While we’re here in Portland, Leftwing Idiot, Lily and I are sharing an apartment-sized hotel suite. I wrote the other day about the difficulties I’ve been having weeing and the bladder stimulating device I’ve been given to try out.… read more
I’ve written a fair bit recently about my wee troubles. I’ve been going to the toilet all the time. It’s frustrating enough during the day, but at night it’s horrible and adds a whole extra dimension to my sleeplessness.… read more
Over the last two years I’ve been experiencing increasing pain in my back and hips as well as in other joints, including my wrists, ankles and shoulders. Along with this almost constant pain I’ve also been having difficulties with nausea … read more