I’ve just come through to my bedroom to go to bed. The main light was off already and my bedside light was glowing gently. Two Baclofen tablets were laid out ready for me to take, one at midnight, one at … read more
I woke feeling strangely tense and have felt the same almost all day. There was no particular reason for it and it made me gloomy and irritable. But this evening something happened that broke this feeling – but it also … read more
I’m on a train on the way back from Cardiff. I was performing there yesterday at the Unity, an amazing inclusive arts festival. I’ll write about it in more detail soon, but not going to be the subject of … read more
The utter devastation I’m feeling today is indescribable.
But there’s little need to describe it because the disappointment, confusion and fear I feel is reflected in the faces, voices and status updates of everyone I know.
Just a few days … read more
A couple of days ago one of my tics took me aback and made me laugh with surprise:
“Scotch egg castle and the exasperated carrot.”
It wasn’t the content of the tic that made me chuckle but the fact that … read more
Yesterday the clocks went forward. Tomorrow is the first day of our Easter playscheme at work, and today the sky is blue. But so am I. I woke up feeling sad, and this feeling’s grown throughout the day. This afternoon … read more
Carbon fibre may be five times stronger than steel, but it’s no match for tics!
Last night my much-loved wheelchair suffered a shocking break. I was out at a pub for my friend Lottie’s birthday and chatting to some friends. … read more
It was a relief to close my eyes and go to sleep last night – they were sore and tired from the tears I’d been shedding hours earlier.
This morning I’m in a reflective mood, determined to write about the … read more
My jaw had become locked open and my body was twisted by spasms in my muscles. I was at home, on the sofa, cushions and padding everywhere, with a carer in the same room. I should’ve been feeling safe but … read more
On Friday afternoon I sat in our sunny playground and cried. My colleagues were all busy doing their work in the office, but I couldn’t do mine – I was stuck on the phone to the Department of Work and … read more