Monthly Archives: December 2017

“2017, Year of the Oscillating Grin”

I’m quite surprised to find myself at the last day of 2017. There are a million clichés about time passing quickly, and I’m loath to mention any of them, but this year really does feel as if it’s gone by … read more

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Not Complex At All

Earlier today Leftwing Idiot sent me a photo of a poster for an event taking place near the castle. He’d noticed it because it used language commonly associated with disability, ‘Complex Needs’, and had the tagline ‘A Christmas party for … read more

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Shakespeare’s Globe - The Remix

Back in September we teamed up with artist and researcher Will Renel from the Helen Hamlyn Centre for Design to run a weekend of creative collaboration called Remixing the Globe. The workshop was for young adults with Tourettes and explored … read more

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Picture The Pain

For the last year-and-a-half I’ve been experiencing chronic pain in my back and hips which often keeps me awake at night. Despite having written about it a lot, I still haven’t worked out how to describe it effectively to other … read more

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Four Years, Two Tics and Thirty Christmases

Touretteshero’s had a birthday party in the past, and has delivered lots of events, but we’ve never had a team party before, and that’s because until recently we were mainly just a team of two, Leftwing Idiot and me.… read more

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Let’s Talk About Faff

I delivered a training session today for a media company who are making a documentary about Tourettes.

Often when I’m training people on issues relating to inclusion and equality I talk about the need to reduce ‘faff’ around disability. My … read more

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Thank You Cheggers

While my tics might not be part of my conscious thought processes, they definitely reflect the time and cultural references of my childhood, and this means that the stars of 1980’s children’s TV get a strong showing.

Of all these … read more

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Train Chat

I’ve been in Milton Keynes today for a meeting: Leftwing Idiot, Will, Lily and I travelled there by train. Even though it’s only a short journey I transferred out of my wheelchair and onto a seat to be a bit … read more

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What’s In The Box?

The festive season’s in full swing and I’ve been doing my Christmas shopping. My tics add an extra layer of complexity to this, but it’s not because I have trouble getting to the shops – online shopping sorts that out … read more

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