Last week I wrote about how I was coming to the end of a very long and enjoyable audio book. I asked what I should listen to next and was overwhelmed with suggestions – thank you to everyone who recommended … read more
For the last few months this blog’s been dominated by posts about pain and fatigue. Keeping a balance of funny, serious, poignant, political and practical posts has always felt important to me, but it’s hard to … read more
Years ago I was into drawing the connections between different objects in my room. I’d map them, usually using myself as the starting point.
Tonight as I lay in bed trying to sleep, the coiled ball of pain that sits … read more
Over last few months I’ve spent much more time in bed than I would’ve liked. On-going issues with pain, nausea and fatigue mean I need to rest a lot.
Listening to audio books is something I’ve been doing a … read more
There are just two weeks until we bring the Barbican’s Pit to life with amazing activities and performances for children and adults, celebrating creativity, diversity and bottom-up change.
Brewing In The Basement has a sensational line-up of radical artists all … read more
My niece is five months old now and she’s amazing company. We hang out together most days and I absolutely adore her. It’s amazing watching her grow and develop. But as the months pass I can feel myself getting strangely … read more
I’ve written a lot recently about how I’m adapting to experiencing chronic pain.
While this isn’t straightforwardly related to Tourettes, I’ve started to appreciate that my motor tics have put a lot of physical pressure on my body for a … read more
I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position.
Then, a couple of weeks ago after a particularly bad … read more
My Gran loved all sorts of sayings, like, “Don’t throw the baby out with the bath water”, “Let the dog see the rabbit” or “A watched pot never boils.”
But she particularly loved sky-based sayings: “There’s enough blue sky to … read more
I’m taking regular pain killers at the moment because of the chronic pain I’m experiencing in my back and hips – they’re essential for helping me get through the day and feel comfortable.
But I’m not brilliant at remembering to … read more