It’s been over two years since tics in my legs began severely affecting my mobility. When I’m out and about I use a wheelchair, but indoors I tend to wobble around holding onto furniture or grab rails, or I crawl around on my knees.…

Every now and again when Poppy’s pushing my wheelchair she’ll suddenly say ‘Look, no hands’ as a joke. She usually does this when we’re on a hill, and it makes me squeal with excitement even though I know she never normally lets go.…

An Open Letter to Nick Gorse, Dean of Camberwell.

Dear Nick,

A few weeks ago, on the spur of the moment, four friends and I chose to go to the private view of the BA degree show at Camberwell College of Art.…

A couple of weeks ago my friend Sally sent me a message with a link to a project called ‘Hello Lamp Post’ saying, ‘I saw this and thought of you’.

It’s not surprising that it made her think of me given my tics’ fascination with the lamp-post I can see from my bedroom window.…

I’ve just woken up, and sitting at the end of my bed is a large gold pig – the much anticipated ‘Mystery Piggy’. I can hear Ruth pottering about in the living room, her familiar tics ringing through the castle.

Outside my bedroom window the usual view of the garden and lamp-post is brightened by coloured bunting fluttering lazily in the breeze.…

Twelve-year-old guest blogger Dylan is back with some excellent news, a brilliant blog and a fantastic job opportunity. I’ll let Dylan explain…

I’ve got some good news: for four hours per week I’m getting help at home (maybe going places…Ace!…

Last year I wrote about Amy El-Keria who died sadly and unexpectedly in December. Amy was a young person with Tourettes who I’d met at a group meeting. She was found unconscious with a scarf around her neck in her room at a hospital where she was being assessed – she died the following day, aged just fourteen.…

Over the last year the Government has introduced a huge number of damaging policies that target disabled people. These’ve seen spending on support for disabled people slashed, schemes and services abolished, hard won equalities thrown away, and disabled people vilified and subjected to poorly thought out and inhumane assessments.…

On Saturday night Leftwing Idiot, Poppy, Fat Sister, King Russell and I went out for a drink near the castle. It seems that lots of other people had the same idea and the bars of Peckham were heaving with people.

I’ve lived in this area for almost fifteen years and don’t feel things have changed that much.…

It’s my birthday on Sunday, so on Saturday I’m celebrating with a party at the castle. Poppy and I were talking about it last night and she asked who was coming. My tics responded by revealing this rather unusual guest list:

“All the Romans”
“Chopin”
“The dog from Beethoven”
“Carol Vorderman”
“Some 19th century Egyptian monks”
“The little dog from The Mask”
“A catnip salesman from Istanbul”

In addition I explained that

“I’ve invited some lamp-posts as well.”…