Yesterday the organisation I work for had its Annual General Meeting (AGM). Like all AGMs there was all the formal business to get through, but there was also a much more relaxed and celebratory element too. We had delicious food and a treasure hunt all round the adventure playground.…

We’re five days into December and Christmas is just around the corner. I thought now might be a good time to remind everyone of last year’s fantastic festive animation. Please do share this with anyone you think needs their day brightened by Captain Bin – among others.…

Over the last few weeks I’ve been experiencing a strange new phenomenon, which I’m calling Sophie Fits.

During almost all my recent ‘ticcing fits’ I’ve talked about Sophie, both my old friend (and former support worker) Sophie who recently moved to Cuba, and more bizarrely Sophie Dahl former model and granddaughter of the well known children’s writer Roald.…

Today is International Day of Persons with Disabilities, a day set up and championed by the United Nations since 1992 to celebrate disabled people’s achievements across the world. But if you’re a disabled person in this country you might not feel like celebrating because so many of us are losing vital benefits, being pushed into debt, and having our independence and quality of life eroded by the policies of the current government.…

Yesterday I wrote about the arrival of a new piggy, bringing my collection up to eight. I keep these colourful, squeaky pigs on display in my living room.

I love the pigs but find them extremely over-stimulating. They make me instantly and inexplicably excited and my tics overreact wildly.…

On Friday, much to my delight, I had a fit free day – a whole day without a ‘ticcing fit’. Tradition dictates that I get a ‘piggy’ as a reward – a squeaky rubber dog-toy shaped like a pig.

I already have seven pigs – Pink Piggy, Black Piggy, Mystery Piggy, Blue Piggy, White-Van Pig, Neon Piggy & Green Piggy.…

Every Christmas for the last three years I’ve shared a festive themed tic for each day of Advent. Tomorrow’s the 1st of December, when the run-up to the festivities begins in earnest, and once again I’ll be sharing a Christmassy tic on each day.…

This year everyone seems to be talking about it being ‘Black Friday’ today, and I don’t remember ever hearing about this before.

For anyone still in the dark, Black Friday’s the day after Thanksgiving in the United States and it’s often thought of as the beginning of the Christmas shopping season.…

As I’ve mentioned before I’ve been having a great time out and about in my new Trekinetic wheelchair, mainly because I can propel myself when I’m outside, much, much more easily than with the standard chair. This means I don’t need to be pushed as much, and I can wheel along next to my friends and support workers, which is lovely.…

I’ve been enjoying something of a dip in the regularity and severity of my ‘ticcing fits’ in the last couple of weeks and one benefit has been a welcome increase in the number of uninterrupted nights sleep I’ve had.

But this lucky streak came to an end last night when I woke at 5am having a little fit.…