Baclofen, the new drug I’m taking, comes as a liquid. My arm tics make taking it with a teaspoon impossible so I use a syringe. It’s a syringe without a needle so I can just squirt the medication straight into my mouth.…

I’ve talked a number of times before about the strong sensations I sometimes get from my tics. In the last couple of weeks these have been giving me bouts of intense discomfort. When they happen I move constantly with no control over what I’m doing.…

I’ve had a lovely day. After a drizzly start it turned into a bright Saturday and the playground I help run was awash with early spring sunshine – and with children.

I was at work today, but I wasn’t working. My support arrangements had come unstuck at short notice, which meant there wasn’t anyone around to be with me at home, so I went in with Leftwing Idiot.…

Poppy and I went to the shops earlier with me in my wheelchair and I kept ticcing very loudly: “I’m being punished for being a sinner!” and “I have an evil spirit inside me!”

I’ve no idea why these tics suddenly surfaced but I do know from previous experience that this is exactly what some people think when they see and hear me.…

Since I started having ‘ticcing fits’ back in October I’ve been recording how many I’ve had each day and how long each one’s lasted. Every night I enter the numbers onto a spreadsheet. The other day Leftwing Idiot suggested it would be possible to generate some random lottery numbers from all that data and I really liked his idea.…

Last year as my mobility deteriorated I described watching a lovely day drift past and how sad I felt at not being able to go out and enjoy it. It was particularly upsetting because I knew it was a situation that was likely to repeat itself again and again if I stayed living where I was.…

A few days ago I wrote about how my support arrangements had to change at short notice because so many of my friends and support workers were ill. Today there’s been another last minute change, but this time it’s because I’m not well myself.…

It’s Leftwing Idiot’s turn to support me during the night tonight but because he’s not been very well for the last few days and still isn’t 100%, I’ve come to his flat for the night so at least he can stay in his own bed.…

I’ve touched on the subject of spitting tics before, usually to say they’re happening but that I don’t really want to write about them. My instinct with tics that I find distressing is to ignore them, but this time I’m going to fight that instinct and write about spitting.…

Sorting out who was going to provide my support this evening proved a little tricky because most of my regular team had romantic plans.

Thankfully I have a sibling who a) isn’t fussed about Valentine’s Day, b) lives nearby and c) had the good sense to marry a kind and thoughtful man.…