I have an unusual and fluctuating relationship with the lamp-post I can see from my bedroom window.

I scold, nag and insult it on most nights.
But I also invite it into my bed when it’s cold.

I deride all lamp-posts at every opportunity.…

It’s been a tough day, not because anything dramatic has happened but simply because I’ve been feeling lousy.

This isn’t a one off– I’ve been struggling with chronic pain, nausea and fatigue for months.

I’ve got used to feeling ill, to waking up overwhelmed by nausea, to constant nagging pain in my back and hips, and to fatigue muddling my thoughts.…

It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.

Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing Idiot was sunbathing in the garden.…

I studied drawing at art college and really got into mapping the world around me in various ways. I was particularly interested in how objects, people and spaces connect.

I’ve been in a lot of pain today so I’ve stayed in bed and taken it very easy.…

A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.

The surveyor was late and while we waited I quizzed my OT about how other disabled people had made their kitchens more accessible.…

Lily’s doing my overnight support this evening – we’ve finished brushing our teeth and we’re getting ready for bed.

After doing my teeth she helped me transfer out of my wheelchair and onto the toilet. While I coaxed my wee out Lily brushed her own teeth.…

If you’re in the UK it’s unlikely to have escaped your attention that there’s a wedding happening today – the marriage of Prince Harry and Meghan Markle.

I’d been expecting this post to be about wedding-related tics and I certainly had some at the start of the day:

“Royal weddings make the corgis wee.”…

I’ve written a fair bit recently about my wee troubles. I’ve been going to the toilet all the time. It’s frustrating enough during the day, but at night it’s horrible and adds a whole extra dimension to my sleeplessness.

When I had my bladder scanned recently they found it was twitching and moving about without me asking it to (much like every other part of my body).…

When I was at college I used to find seminars really stressful. When I wasn’t worrying about the noises and movements I was making I was battling to stay awake. Dark, warm rooms and the hypnotic whir of a projector would leave me fighting to keep my eyes open.…

Dear Jacqueline Wilson,

I’ve got a confession to make: I, a thirty-seven-year-old woman, spent the Easter weekend watching the CBBC adaptation of your book Katy (a retelling of the What Katy Did stories). I’m sure I’m not the only adult who enjoys your writing – who wouldn’t love your vibrant, believable characters who speak directly to us about their lives and worries?…