This morning I’m heading off for an interview on ITV’s This Morning. I’m a bit nervous but also pleased and excited to have the opportunity to share my experience of living with Tourettes on such a popular show.
The last few weeks have been a whirlwind – I’ve done lots of radio and newspaper interviews and as a result many more people have been finding and enjoying this site.
I’ve had incredible messages of support and lot’s of encouraging comments online.
‘You are an inspiration! I love it that you are using humour to deal with what is a very challenging condition. My 12 yr old son has Tourettes – his tics are more discrete than yours and he is able to suppress them for a time and then release them when he is at home, but sometimes he has to let them out. But if more people understood about TS and there wasn’t the stigma about it, people could tic freely without fear of being mocked or misunderstood. We encourage our son to do what he feels comfortable with and hopefully one day he will have your confidence to tic freely.’
There have also been some negative comments and I know Fat Sister reads these and worries about how they might affect me.
One person rather unflatteringly described me as a ‘Parasite.’ But nasty comments aren’t new – they’re often the sorts of things strangers have said on busses or in shops. But each time I, or someone else with Tourettes, speak openly and publicly about the condition, the likelihood of a negative comment or experience becomes a little less likely.
Speaking out about Tourettes isn’t simply a decision I’ve made – it’s a vital tool in limiting the social impact my tics have on my life.
Touretteshero is for everyone, with and without Tourettes. It’s about embracing the humour and creativity of one of the most misunderstood conditions on the planet.
Together we can change attitudes and replace fear and ridicule with understanding and empathy, one tic at a time.
If you’ve just found the site, please take time to look around and enjoy exploring it. You can learn more about the ups and downs of my life with Tourettes in the daily blog, browse thousands of tics, and marvel at the amazing art they’ve inspired in the gallery.
If you saw me on This Morning and liked the “Stuff my mouth with pencils” T-shirt I was wearing, please visit the shop and pick one up for yourself. All the money we raise goes towards putting on creative events for children and young people with Tourettes and maintaining this site.
You can see fantastic event photos here and discover how a new team of young Tourettes superheroes saved the world in this video.
If you like what we’re doing, get involved:
Together we can transform attitudes and make life better for the 300,000 children and adults living with Tourettes in the UK.
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