Like my other support workers, Leftwing Idiot uses my tics as a sort of sonic signal that I’m all right and not having a ‘ticcing fit’.

The other morning I was working in my bedroom and he was in the next room.…

It’s felt like I’ve been on a roll – Saturday was another ‘piggy day’ – a day without a ‘ticcing fit’ – and yesterday I still hadn’t had one all morning. But then, shortly after midday, my muscles tightened, I curled forward unable to move, and my body locked solid in a twisted ball.…

I’ve written countless times about Leftwing Idiot’s geranium. About shouting at it, singing to it, teasing it and, most recently, caring for it while he was away for the summer. Several weeks ago he eventually took it back, leaving me with an empty window ledge.…

I’m going to start this post by telling you about two things I did yesterday. They’re almost unrelated but there is a connecting thread between them.

Firstly, yesterday was the last day of our half term playscheme at work. I led a small group of children across London on a trip to the Adventure Playground of the Year Awards.…

Yesterday was Halloween, or as my tics renamed it:

“National fake blood in your eyelashes day.”
“National diabetes advancement afternoon.”
“National knife a pumpkin night.”

Last night the nature garden at work hosted a spooky Halloween event. Over two hundred children and adults came down to the woods to take part in a terrifying quest.…

Well it was a strange sight – hundreds of adults sitting on the floor in groups happily cutting, sticking and chatting while they made mini-motorised Daleks. All perfectly normal it seems for London’s Science Museum Lates where once a month the Museum opens late just for adults.…

Now, it’s fair to say I go on about accessible toilets more than your average blogger. But ever since I started using a wheelchair almost two years ago, I’ve been bothered by below bog-standard bogs.

I’ve mentioned how non-disabled people tend to use them for a sneaky poo, how badly fitted grab rails have a habit of the falling off the wall, and how important the emergency alarm cord is.…

A few days ago I took up a new role, one almost as daunting as being a superhero. I undertook to be Godmother to my friend Laura’s son Leo. Laura first asked me back in January when Leo was only a month old.…

The UK’s been bracing itself for a massive storm for several days now. As I lie in bed psyching myself up for the day ahead, the big trees I can see from my window are blowing about wildly. They don’t look like a rolling ocean today, more like hyped-up rockers banging their big heads frantically to their favourite tune.…

It’s with huge pride that I can finally announce another ‘Pig-tory’ (it’s like a victory, but with pigs).

I’ve written a number of times about the strange tradition that’s developed whereby I get a pig-shaped dog toy for every full day I have without a ‘ticcing fit’.…