I was hanging out with Fat Sister at the castle this Sunday. She was mostly doing exam revision and as a result I heard more online neurology podcasts than I’d have liked.
While she was studying I enjoyed pottering around the castle.…
Today’s the start of Tourette Syndrome Awareness month. Some people might question why Tourettes needs a whole month of awareness. After all it’s a condition that most people have heard of, it’s frequently mentioned on TV, in films, by celebrities, and on social media sites, and I imagine it regularly crops up in casual conversations between friends.…
I’m writing in the last half hour of Sunday, 12th May 2013. So far today I’ve not had a single ‘ticcing fit’. My fit-recording sheet is beautifully blank, something that hasn’t happened since 21st October 2011.
Since that day I’ve had a fit (usually several, sometimes more than twenty) every single day.…
This afternoon Leftwing Idiot and I went to a very special party. It was to celebrate ten years of the children’s charity Daytrippers Foundation.
Over the last ten years Daytrippers Foundation has helped nearly 20,000 disabled children to go on exciting trips or take part in innovative events.…
This morning I had the privilege of speaking to the Board of the London Ambulance Service (LAS) about Tourettes, my experiences of their service, and the NHS in general. The Board governs the whole of the LAS and it’s made up of very experienced people from within the NHS and other large organisations.…
The final post of any year feels like a big deal. But at the end of such a busy year this one feels particularly significant.
As the third year of Touretteshero comes to a close I feel incredibly proud of what we’ve achieved.…
Each day since the beginning of December I’ve posted a Christmas related tic as my festive outburst. In the last few weeks I’ve shared seasonal tips, poems and messages – all building up to today!
This morning I’ve just got one message for you – Happy Christmas!…
Today, if you’re a child, you’ll be eagerly anticipating the joy that tomorrow will bring. If you’re an adult, you’re probably sick and tired of the festive season and worrying about getting the presents wrapped up and the food prepared in time.…
We’re into the last few days before Christmas and as preparations get more hectic I thought I’d share the key things that have made getting ready for the season’s festivities easier for me this year. Here are my top five tips for an accessible Christmas:
1.…
Tonight the castle hosted a special party in honour of Brian. Many of my regular friends and support workers turned out in his honour – Leftwing Idiot, Poppy, Bunny, Fran, Claire, King Russell and Fat Sister. Brian however failed to show up.…
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