Regular readers of this blog will know I need no excuse to write about wheelchairs. When it comes to wheelchairs I’m a woman obsessed, but it’s an obsession with a very valid origin. The right wheelchair gives me autonomy and confidence, but the wrong one depresses me and limits my freedom.…
Nearly every day for almost four years I’ve had episodes that I call ‘ticcing fits’ when my usual tics suddenly intensify and I completely lose control of my body and speech.
Although they look seizure-like and need similar management, they’re a feature of my Tourettes, not of epilepsy.…
Several years ago I started taking a muscle-relaxant medication called Baclofen and from the very beginning I noticed that I needed to wee more frequently and urgently. My doctors didn’t seem surprised by this and apparently it’s not an uncommon side-effect.…
I’m on a train on the way back from Cardiff. I was performing there yesterday at the Unity, an amazing inclusive arts festival. I’ll write about it in more detail soon, but not going to be the subject of today’s post.…
The rain was drumming gently on the tent as I slowly surfaced this morning and carefully stretched my stiff and tired body. None of us was in a rush to get up and by the time we were all awake it was dry again outside and slowly but surely the clouds had started to clear.…
The tent was incredibly hot when I woke up and although it was early I could feel the heat of the sun through the synthetic fabric. I opened the flaps to let in a much-needed breeze and the daylight flooded in too.…
Today started earlier than I’d have liked. It was 4:00am when I woke up having a ‘ticcing fit’. I was face down, in a sleeping bag, unable to move or make much noise. All I could manage was a weird little bark and I was fairly sure this wouldn’t be enough to wake Lottie, but fortunately after a few minutes she came to my rescue.…
For the last few days I’ve been ready, both mentally and physically, with all my packing done, to leave London and plunge into the busy, beautiful and often muddy world of Glastonbury.
This morning Fran, Will, Lottie and I packed the car with two tents, two wheelchairs and more glitter than four people could ever need, and headed for Somerset.…
On May 8th, in Brighton, I woke up to the crushing news that the Conservative Party would again be forming the next Government, this time with an overall majority. Straightaway I determined to turn my great sadness at this outcome into positive action.…
Ana, my regular morning carer, has been on holiday for the last few weeks, and Veronica, who’s supported me on and off for the last few years, has been taking her place to help me get washed and ready for work.…
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