One way or another I’ve had quite a few medical appointments recently. Some have been OK, but some have been frustrating.

As someone whose body is noticeably different from what health care professionals are trained to expect, I’m aware that unthinking assumptions can often be made about my life and my needs.…

A week ago I had a minor operation. It involved a general anaesthetic and a small incision in my chest not too far from the spot where my chest-thumping tic hits it hundreds of times a day.

I’m generally mending well but because the wound on my chest was struggling a bit and hadn’t closed properly, I went back to hospital a few days ago where they dowsed me with iodine and re-sealed and re-dressed the wound.…

I’ve been resting at home after a minor operation on Friday to change my pacemaker battery. As a result my sleep has been a bit disrupted by pain and discomfort in my chest. But last night it was disrupted by something very different – “Iron Ore”

Well “Iron Ore, Yeah!”…

Tics can add an extra element of danger to anything, even getting a haircut. For years I’ve had the same hairdresser, Ravi. She’s patient and fearless and knows exactly what to do with curly hair.

A few weeks ago Ravi cut my hair really short.…

I started the month with a post which I now freely admit was an April Fool – congratulations if you spotted it!

Now, a couple of weeks in, I have to share something that I really wish was just a thinly-disguised joke, but it isn’t.…

I was hanging out with Chopin all weekend and we had a lovely restful time – eating chocolate, watching films and pottering around the castle.

She arrived with a very exciting gift. It was a massively over-exciting gift in fact – the minute my hands touched it my tics went into overdrive!…

So Teresa May has announced a general election on 8th June!

Innes, my support worker, announced this on the bus half an hour ago as we were on our way back from a hospital appointment.

The news surprised, confused, excited, terrified and depressed me all at once.…

I don’t know if I’ve ever revealed this before but I’m a secret lover of detective dramas and murder mysteries. I’ve enjoyed them since I was a child when I used to scare myself with Poirot while I should’ve been watching Thundercats.…

I’ve just taken some pain relief medication which means I’ve got about thirty minutes before I start feeling woozy and this post descends into nonsense.

I’ve been catching up with writing and putting off taking painkillers so I can focus. But this is the last post I need to get done and since it’s about pain it felt appropriate to do it while waiting for the medication to kick in.…

People are being disabled at an alarming rate and the culprit’s sweeping across the country unchecked, robbing people of their mobility, independence, and quality of life.

So who is this culprit, and what is the biggest cause of disability in the UK today?…