Monthly Archives: August 2020

The Agony Shelf

Here at Touretteshero we have what we call the ‘Ideas Shelf’. It’s an imaginary shelf and we put ideas for future projects, events or services on it. These ideas are then ready to be taken off the shelf when the … read more

Leave a reply

Blustery Tree

It’s been a long, busy week and for a good part of it I was managing a heady mix of pain and nausea. One of these on their own I can usually cope with, but both together is overwhelming.

This … read more

Leave a reply

F***ing Captions

I did a stand-up comedy gig this afternoon, the first since lockdown. It was online of course, but it was still great to be performing again. The show was with Abnormally Funny People, a collective of disabled comedians. Alongside … read more

Leave a reply

Not NICE At All

Since 2016 I’ve experienced chronic pain in my lower back and hips. The quality and intensity of this pain changes, but I’m very rarely pain-free. Left unmanaged, this pain has a profound effect on my ability to think, concentrate, work … read more

Leave a reply

Balancing Realities

After an extraordinary five months, many aspects of life are spinning back into some sort of normality. For most people there might be some minor changes to how they live, work or socialise, but I get the impression that some … read more

Leave a reply

Monkey’s Bunk

As I type this from my bed, Monkey is curled up by my side. He’s not actually in bed with me, but in his own bunk, less than an arm’s length away.

After months of resisting, I’ve finally given in … read more

Leave a reply

Long Awaited Squeeze

On Sunday 15th March I went swimming with my niece Bean and her dad, my brother-in-law, King Russell. Afterwards we came back to the castle and watched a film together. What I didn’t know as Bean and I sat … read more

Leave a reply

Results Day

Not a lot of people know this, but I was meant to leave school at sixteen and go to agricultural college to study ‘land based industries’. It was all organised, but then something happened that changed everything: I did way … read more

Leave a reply

Raising a Child with Tourettes - Five Ideas For The Early Days

I’ve seen a few social media posts recently from parents of children with tics who are yet to receive a diagnosis. I imagine the pandemic will have slowed this process down even further and suspect there will be families having … read more

Leave a reply

Welcome to Our Tourettes Family

Normally when I write this blog, I’m writing for everyone – all ages, all backgrounds, with all sorts of bodies and minds. But this post is different because I’ve written it specifically for children and young people who are at … read more

Leave a reply