Monthly Archives: May 2017

The University Of The Castle

It’s half term this week. When I worked at Oasis, a busy children’s play organisation in Stockwell, the school holidays were always our busiest period. Now that Leftwing Idiot and I work full time for Touretteshero, the pattern’s … read more

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Bringing Confusion To My Door

This morning there was a buzz at the castle door. My support worker was in the other room so I crawled through to answer it.

It was a delivery driver with a package for one of my neighbours, and I … read more

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Not I and Me

Years ago, long before Touretteshero and way before getting on stage had even crossed my mind, Leftwing Idiot introduced me to a short play called Not I by Samuel Beckett. I’d never read any of Beckett’s work before, or … read more

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Wheely Brilliant

Last night I wrote with nervous excitement about my appointment with NHS Wheelchair Services this morning. We got off to a wobbly start because the taxi I’d booked was 45 minutes late and the longer we waited the tenser I … read more

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Wheely Excited

It’s nearly midnight and I can’t sleep. A weird mixture of pain, excitement and apprehension has left me feeling the sort of nervous excitement you get before the first day at a new school. But it’s not that sort of … read more

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Your Home Or Your Life

I’m incredibly fortunate to own my home. I know that for many people the current crisis in housing makes this impossible, and is likely to do so for future generations. I watch people I care about being held hostage to … read more

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“Strong and Stable Is For Tables”

Like all super villains and/or daft comedy characters, Theresa May has a catchphrase. It isn’t “Exterminate!” like the Daleks, although that would fit with her polices, and It certainly isn’t, “I have a cunning plan” like Baldrick in Blackadder.

Theresa’s … read more

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Who Has Special Needs?

I can’t remember how old I was when I first heard the term ‘special needs’ or when it was first used to describe me. It’s been a persistent presence throughout my life – from when it was used about me … read more

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Pillars of Support In A Vicious Cycle

Fran pulled the covers tightly across my body. She sat next to me on the bed, her hand applying gentle pressure to my head. Exhausted, my body moved erratically, my forceful, regular and rhythmic vocal tics punctuating the quiet darkness … read more

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An Appointment With Hope

One way or another I’ve had quite a few medical appointments recently. Some have been OK, but some have been frustrating.

As someone whose body is noticeably different from what health care professionals are trained to expect, I’m aware … read more

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