During a ‘ticcing fit’ my body often contorts and gets stuck in strange positions. Over the last few weeks a new tic has snuck in which involves my jaw opening as wide as it’ll go. It’s painful and difficult to deal with, and though it might look a bit comical, when the muscles are extended and tense it hurts right along my jaw line and into my ear and neck.
I can’t close my mouth or explain to the person helping me what I want them to do, and that leaves my friends and carers with a tricky dilemma. Should they risk damaging my jaw by forcing my mouth shut, or leave me in clear distress with my mouth wide open?
At the moment I’m asking everyone to try a combination of the two – trying to relax my jaw by rubbing the side of it, and then gently pushing it shut.
I’ll be seeking medical advice as soon as I can.