This time two years ago I made a resolution – to look for ways to acknowledge and celebrate my tics rather than ignore them and the increasing impact they were having on my life.
I’m proud to say that this is a resolution I’ve kept. And it’s done me more good than any other New Year’s promise I’ve ever made.
Two years ago Touretteshero was an idea that Leftwing Idiot and I had just had.
A year ago, half of this blog existed but it had only been read by a handful of people. We had some amazing images but no amazing gallery to show them in. Excitingly though, we’d just held our first event.
I’m very excited about what the coming year will hold for Touretteshero.
Personally, the last two years have had some very tricky times as well as many high points.
A year ago I wasn’t yet having explosive ‘ticcing fits’ but neither was I sleeping for more than a few hours a night. This made me a lot less resilient during the day and very dependent on my friends for practical and emotional support.
Today some people will see my wheelchair, my support worker and my fits as signs that things have got worse. They don’t feel worse. There have been times I’ve felt things were pretty tough, but with the help of friends, professionals and strangers I feel well supported and ready for the challenges and opportunities 2012 has in store.
There’s been shared laughter with Laura
The joy of hanging out with Poppy
The unstinting loyalty and love of Fat Sister
The consistent IT genius of King Russell
And my enduring friendship with Leftwing Idiot which has made Touretteshero possible and my life with Tourettes much easier and happier.
During the last six weeks I’ve spent over 113 hours having ‘ticcing fits’, an average of almost three hours a day. That’s obviously a lot, but when I looked at the UK Time Survey (which shows how people in this country use their time), I discovered it’s less than the average person spends sitting on the sofa every day.
I was shocked to discover that most people spend an average of only 6 minutes a day laughing. Thanks to Tourettes, I know that my friends and I laugh a lot more than this. Hopefully now you’ve found this website you will too.