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The Right Chair

Regular readers of this blog will know I need no excuse to write about wheelchairs. When it comes to wheelchairs I’m a woman obsessed, but it’s an obsession with a very valid origin. The right wheelchair gives me autonomy and… read more

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Tic Box

A couple of weeks ago I received an email from Sophie, an amazing young artist who has Tourettes. She shared with me some images of an incredible creative project she’d undertaken in response to her tic. I was blown away… read more

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Post Lamp-Post Post

It’s just after 11pm, I’m sitting in bed, and the lamp-post I can see from my window is glowing warmly. I’m chatting to it periodically as I do most nights. Tonight, though, the conversation has particular significance:

“Lamp-post, were… read more

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It Seems I Had a Fit

Nearly every day for almost four years I’ve had episodes that I call ‘ticcing fits’ when my usual tics suddenly intensify and I completely lose control of my body and speech.

Although they look seizure-like and need similar management,… read more

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Taking the Piss

Several years ago I started taking a muscle-relaxant medication called Baclofen and from the very beginning I noticed that I needed to wee more frequently and urgently. My doctors didn’t seem surprised by this and apparently it’s not an uncommon… read more

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