I’ve just come off stage after my first ever stand-up comedy gig. This is daunting enough for anyone at the best of times, but thanks to my tics I never know what I’m about to say next. There’s an element… read more
Thanks to Poppy at one end and Chopin at the other, Leftwing Idiot and I have made it safely to Edinburgh. Leaving a scorching London this morning we were very soon reminded that it’s much colder up north.
We’ve settled… read more
Ruth was supporting me as usual last night, but she didn’t come alone – her niece, Shaniah, and nephews Adoni, Zachariah and Shiloh came too.
The first thing Shiloh asked was ‘Can we play in your wheelchair?’ This… read more
Sometimes my tics suddenly pluck a word out of obscurity and through tone, pronunciation, and obsessive repetition, turn it into something surreal.
Today, “mottled” was in for this treatment.
It’s not a word I’ve ever given much thought to, let… read more
Most mornings my support worker Ana helps me wash and get ready for work, but occasionally she’s not available Veronica steps in.
Veronica’s been supporting me on and off for almost four years and we know each other really well.… read more
The summer’s whizzing by and I can’t believe it’s August already. My tics on the other hand are fully aware of the new month. This morning as I was getting ready for work all this popped out:
“August is the… read more
I’ve just found a couple of photos on my phone that made me laugh. I took them in Cardiff when Will and I were there last weekend for the Unity Festival, just before we headed home. It was… read more
A few days ago I wrote about some bladder issues I’ve been having. Today I’m writing about a fluid leak of a different nature.
I started having a ‘ticcing fit’ on my bed while Zoë, who was supporting… read more
Ana, my regular morning carer, has been on holiday for the last few weeks, and Veronica, who’s supported me on and off for the last few years, has been taking her place to help me get washed and ready for… read more
This afternoon Will and I went to our local Town Hall for a meeting.
We passed a member of staff in the corridor and I found myself making the following three statements:
“You need a hair cut.”
“I like… read more