Leftwing Idiot was providing my overnight care last night. He was quick to wake up and come to my aid when I was having a ‘ticcing fit’ in the middle of the night. Well, most of him was.
His right hand stayed asleep.…
Fat Sister and I were hanging out together yesterday afternoon. We’d planned to go to the park but because it had clouded over we went for lunch in Brixton instead. After we’d eaten we went shopping.
I was keen to move myself about in my wheelchair so I could choose what I looked at and at what pace.…
Leftwing Idiot and I were reminiscing earlier about a ticced song I used to sing on the subject of sheepdogs. Neither of us could remember the words, and unusually nor could my tics. Fortunately I’d written them down in this post.…
The other night I had a ‘ticcing fit’ in the middle of the night. My muscles had gone very tense and my body was so locked up I couldn’t press my buzzer to raise the alarm.
Thankfully my night time support worker heard the unusual noises I was making and came to help.…
Last night Leftwing Idiot and I headed into town for a night of comedy at the Bloomsbury Theatre. Mixing Tourettes Syndrome and live performance can have unexpected and volatile results so I’m extremely careful in choosing what to go and see and where to go and see it.…
I’ve just watched a new video made by Scope and Stephen Fry which challenges us to consider the power that just two words can have. The examples they use in the video include:
‘I’m pregnant’, ‘Marry me’, ‘You’re ugly’ or ‘That’s beautiful’.…
A couple of weeks ago I saw a post by a friend on Facebook that made me stop and think. The post was by Georgie who, like me, has Tourettes. Georgie has recently undergone neurosurgery as part of a trial currently being carried out in the UK.…
Laura sent me a picture message this evening which at confused me. At first glance it was just an image of a seating area in a bar.
Her message read, ‘Only accessible if you’re just a floating head….. in which case you probably wouldn’t need the toilet.’…
Poppy and I have been hanging out at the castle this evening and she’s staying over to provide my overnight care. Just now, as we were getting ready for bed, I began ticcing demands that she mimic my movements.
It started when she asked if I needed her to do anything, to which my involuntary answer was, ‘Look like an electrified meerkat.’…
Yesterday I wrote about how frightened and alone I’d felt when I got stuck on my own, on the living room floor, having a ‘ticcing fit’.
In the early hours of this morning I had another fit, which started while I was asleep.…
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