At work today I had a ‘ticcing fit’ in the toilet. This has happened a number of times before, and even though my support worker stays just outside the door it can take them a while to realise I’m in trouble.…

We had a leisurely start to the morning, the sun was out again and none of us felt in any hurry to leave the field that’d been our home for the past few days. Slowly but surely we did eventually begin to pack up and say our goodbyes.…

I love writing this blog but writing a post every day is a big commitment. Thankfully I’m not the only Tourettes superhero and today a friend of mine has stepped in to help. Let me introduce you to Dylan, AKA Goalie Boy.…

Today a builder from my Local Authority’s Housing Adaptations Team came and fitted a new back door at the castle. It goes from the street into my garden and is operated by a code entry lock. It might not sound that glamorous, but it’s going to offer me increased independence and safety and I’m very excited about it.…

I’ve just read an article about Ben Gerrard, a Brighton man with Tourettes who was asked to leave a shop because of his tics. Ben had popped into a hardware shop after work to buy some tools when he was ordered to leave by the owner of the shop for ‘Making silly noises.’…

For months I’ve been puzzling over my personal budget. This is the money I get each month from Social Services to pay for the support I need to meet my basic care needs. The amount’s based on an assessment and has to be spent as agreed in my support plan.…

I’ve just re-visited a post I wrote last September, shortly after receiving the first copies of my book – Welcome to Biscuit Land. Leftwing Idiot had suggested I should write a message to myself in the front of my own copy and that it should be something I could go back to ‘on days when things feel tough.’…

Yesterday morning Fran and I said a ceremonial goodbye to the toothbrush she keeps at the castle. It was the only red one in the pot of 8 brushes, mine and one for each of my regular night-time support workers. I’d pestered Fran into getting a red one to brighten up all the other green and blue ones.…

Today’s the start of Tourette Syndrome Awareness month. Some people might question why Tourettes needs a whole month of awareness. After all it’s a condition that most people have heard of, it’s frequently mentioned on TV, in films, by celebrities, and on social media sites, and I imagine it regularly crops up in casual conversations between friends.…

I’m writing in the last half hour of Sunday, 12th May 2013. So far today I’ve not had a single ‘ticcing fit’. My fit-recording sheet is beautifully blank, something that hasn’t happened since 21st October 2011.

Since that day I’ve had a fit (usually several, sometimes more than twenty) every single day.…