I haven’t been very well for the last few days so yesterday morning I went to the doctor, supported by Poppy. We’d only been in the waiting room for a minute or so when a boy, aged about two and a half, made a beeline for us.…

I’m going to keep this short because I’m still not very well and concentrating on anything for more than a few moments is a struggle.

My ‘ticcing fits’ have increased dramatically, as they always do when I’m ill. It’s just before 6am and so far today I’ve had at least one fit an hour.…

Yesterday afternoon a very familiar feeling slowly crept over me, and it wasn’t one I was pleased to experience.

My throat began to sting, and it got slowly worse over the course of the evening until it became a sustained throb.…

A month ago I came across the Trekinetic wheelchair at the Mobility Road Show in Telford, which I went to with Fat Sister and my dad.

The Trekinetic’s designed as an all-terrain chair and can go over ground that no conventional wheelchair could ever manage.…

It’s Poppy’s birthday in a couple of days so Zoë and I have planned a surprise. We’ve made her a spectacular and gaudy cake.

Poppy’s a costume designer and has spent a lot of time recently hand-carving some foam into a pair of breasts for a costume for Cassetteboy.…

Yesterday I woke early, as did my friend Nez who’d stayed at the castle last night. By 8.00am we were on our way to Paddington Station and from there we were soon speeding through the countryside towards Penryn.

I’m in Cornwall for a couple of days to run a workshop and give a talk as part of the Penryn Arts Festival.…

A couple of days ago I mentioned that Leftwing Idiot’s soon to be going away for a month. I explained then that I’d sorted out alternative support for myself while he’s away.

This evening we discussed care arrangements for his geranium.…

Tonight’s the last time Leftwing Idiot’s going do my overnight support until September.

Next week he’s heading to Edinburgh where he’ll be in a show with our friends Cassetteboy for the whole of August.

When we first talked about him going away I felt very nervous at the thought of a whole month without him.…

Mum, don’t read this post! But, if you do, I’m fine now so you don’t need to worry.

Yesterday evening the castle was buzzing with people. Leftwing Idiot was here doing some filming in the garden, and a few other friends had dropped in too.…

It’s been over two years since tics in my legs began severely affecting my mobility. When I’m out and about I use a wheelchair, but indoors I tend to wobble around holding onto furniture or grab rails, or I crawl around on my knees.…